tania78

Hi All, This ia Tania and I have been diagnosed with Dysautonomia with POTS for the last couple of years and I have been to many different doctors within Seattle, WA (this is where we live) and in Georgetown, Washington DC but no matter how many different doctors I am seeing and working out for 2 hours everyday I am still having some issues with GI (gastroentology), allergies & dysautonomia. I have 2 neurologists and one of them giving me some hope that with being so active all the time I may get better but no matter what I do I am just feeling worse day by day. I have posetd my some questions before and you were all so wonderful to reply me back. Can you someone please send me the following information below: 1.Does anyone know any great GI doctor in any state? Really helped you out cause no matter what small amount I eat and ( I can only eat 5 or 6 different items) I feel most awful and have done numerous endoscopy and colognoscopy but no good outcome of it. 2.Any great doctor related to allergies? 3.Any great doctor related to Dysautonomia? My husband has great insurance and can go any state.

Thank you so much guys for your help. All very helpful information. God! I feel awful all the times. Few other new symptoms. Please let me know if you have any suggestion/information regarding below: 1.I am not diabetic but when my sugar drops to 80s and 90s I feel like it is 50 and I feel like some type of bugs are biting on my skin 2.Skin burning sensation on and off 3.My hormones are crazy lately, I stopped breas feeding to my little one when he was 15 months old and now he is 26 months old but all on a sudden I am lactating 4.Can't sleep at night and almost wake up 3 or 4 times on average My doc asked me to walk everyday and I do walk for like 2 hrs at least on daily basis but no sign of any improvement yet for the last 2 years. Anyone within the forum has seen any improvement by walking so vigorously every day? Please tell me do I really have any hope or my life will go on like this? I am really at a loss with my life now.....please help. Kind Regards Tania

Hi All, This is my 1st time writing into this forum and really appreciate any help or guidance here. I have been diagnosed with Dysautonomia with POTS almost 2 years ago and have been going to the neurologist, GI specialist, OB, GP, many and many other doctors like endocrinologist, skin care specialist etc. but we are not seeing any improvement what so ever for the last 2 years. I am working out almost 2 hrs. a day and follow any or all instructions from any doctor but my life has come to a complete stop at this junction. I have 2 boys (6 & 2) and cannot do anything for the boys. Lately I had a hernia surgery 2 and half months ago and since then my dysautonomia and POTS are getting worse and these are the things I am seeing lately : a.After any meal within 5/10 minutes I feel extremely dizzy, scary feeling, black outs feeling and my neurologist is saying nothing to do with dysautonomia but GI issue and GI has done lot of tests but saying he doe snot see anything except GERD. b.severe tummy ache and bloating c.Rash d.90% of regular food I cannot eat, nly eat 4 or 5 different food so far... Anyone within the forum seeing or experiencing similar behavior and can share it would be much appreciated. Also any good doctor info in any state will be very helpful. My husband has flexible work schedule and very good insurance so we can go to any state to any doctors. Thanks to all and please, please anyone in the forum help me. Kind regards Tania