I've come a long way from trying to figure out what is wrong with me to finally getting a few answers. I was diagnosed with Small Fiber Neuropathy a few months ago, prior to that they just kept telling me is looked like Fibromysagia. I have not been Diagnosed with Dysautonomia because my current neuro is telling me my bladder pain and my gastroparethesis <--- if i spelled it right has nothing to do with my neuropathy even thought my urologist and gastro Dr's say it does. So as of yet I've only had a tilt table test done but it was a joke because the stuff they were suppose to spray in my mouth went half on my face and when i told them hardly any of it got in my mouth they just said it was fine. I am currently trying to find a Doctor in the area who does autonomic testing with no luck of course. My symptoms consist of:
Abnormal sweating
UTI pain with no UTI found - Confirmed
Slow bowel - Confirmed
Burning pain almost everywhere
Mild Cognative impairment (Memory) - Confirmed
Carpul Tunnel both hands - Confirmed
Migraines/Headaches Daily (Light Sensativity)
Rapid heart beat - Confirmed
Lightheaded when standing
Hypertension - Confirmed
Fatigue
Weakness
Temperature issues - the pain is worse if im in hot or cold environments. I still can't find a good temperature.
I have also been diagnosed with MGUS and I know I am missing something but you all get the picture im sure.
Does anyone elses ears burn? Very curious about that one lol. I would love to hear from anyone in the Kansas City area as I'm not sure where to go anymore.
New To The Forum From Kansas City
in Dysautonomia Discussion
Posted
Hello everyone my name is Jessi.
I've come a long way from trying to figure out what is wrong with me to finally getting a few answers. I was diagnosed with Small Fiber Neuropathy a few months ago, prior to that they just kept telling me is looked like Fibromysagia. I have not been Diagnosed with Dysautonomia because my current neuro is telling me my bladder pain and my gastroparethesis <--- if i spelled it right has nothing to do with my neuropathy even thought my urologist and gastro Dr's say it does. So as of yet I've only had a tilt table test done but it was a joke because the stuff they were suppose to spray in my mouth went half on my face and when i told them hardly any of it got in my mouth they just said it was fine. I am currently trying to find a Doctor in the area who does autonomic testing with no luck of course. My symptoms consist of:
Abnormal sweating
UTI pain with no UTI found - Confirmed
Slow bowel - Confirmed
Burning pain almost everywhere
Mild Cognative impairment (Memory) - Confirmed
Carpul Tunnel both hands - Confirmed
Migraines/Headaches Daily (Light Sensativity)
Rapid heart beat - Confirmed
Lightheaded when standing
Hypertension - Confirmed
Fatigue
Weakness
Temperature issues - the pain is worse if im in hot or cold environments. I still can't find a good temperature.
I have also been diagnosed with MGUS and I know I am missing something but you all get the picture im sure.
Does anyone elses ears burn? Very curious about that one lol. I would love to hear from anyone in the Kansas City area as I'm not sure where to go anymore.
Thanks for listening
Jessi