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peralez01

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  1. Hello everyone my name is Jessi. I've come a long way from trying to figure out what is wrong with me to finally getting a few answers. I was diagnosed with Small Fiber Neuropathy a few months ago, prior to that they just kept telling me is looked like Fibromysagia. I have not been Diagnosed with Dysautonomia because my current neuro is telling me my bladder pain and my gastroparethesis <--- if i spelled it right has nothing to do with my neuropathy even thought my urologist and gastro Dr's say it does. So as of yet I've only had a tilt table test done but it was a joke because the stuff they were suppose to spray in my mouth went half on my face and when i told them hardly any of it got in my mouth they just said it was fine. I am currently trying to find a Doctor in the area who does autonomic testing with no luck of course. My symptoms consist of: Abnormal sweating UTI pain with no UTI found - Confirmed Slow bowel - Confirmed Burning pain almost everywhere Mild Cognative impairment (Memory) - Confirmed Carpul Tunnel both hands - Confirmed Migraines/Headaches Daily (Light Sensativity) Rapid heart beat - Confirmed Lightheaded when standing Hypertension - Confirmed Fatigue Weakness Temperature issues - the pain is worse if im in hot or cold environments. I still can't find a good temperature. I have also been diagnosed with MGUS and I know I am missing something but you all get the picture im sure. Does anyone elses ears burn? Very curious about that one lol. I would love to hear from anyone in the Kansas City area as I'm not sure where to go anymore. Thanks for listening Jessi
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