Jerry

No, I haven't had a workup yet with a neuro, but I just set one up for next week, so we'll see. But given that the trembling is arms and legs and trunk I'm starting to think it's endocrine rather than neuro.

Arizona, you've been terrifically helpful. No, the trembling it not only when I'm brady, but it does seem like it's more often when I'm brady. Please tell me more about this poor man's tilt test, if you would be so kind. ] You're right about this looking like nerve damage. It looks that way to me. I also agree that the big question is why. Earlier this year I had several surgeries, three esophageal ablations and one gallbladder removal. I've seen somewhere that sometimes neuropathy can come as a result of trauma such as surgery. I don't know if that's true or not. No, I haven't been checked for cortisol, but I've come to the conclusion that I should be. Thanks for all your help.

E, autoimmune has not been on the table so far. I'll make sure to put it there.

Thanks, Arizona Girl. My issues don't seem to be triggered by standing up. It mostly happens when I'm sitting, though I do get some relief from laying down. But I can get this brady-type arrhythmia in any position. My heart slows way down for several beats then returns to normal cycles through that for minutes or even hours. I saw the cardiologist and he said it was alternative atrial pacemaker and completely benign. Okay, but it doesn't feel benign and its severely disrupting my life. I asked him about this being some kind of ANS problem like Vagus and he seemed to think it was some kind of vaso-vagal depressive issue. So you're suggesting that there might be an auto-immune problem, i.e. my immune system is attacking my own nerves? Could be. However, I noticed that this started just several days I tapered off my Prilosec, so I was thinking some kind of acid damage or at least over stimulation of the vagus nerve system. I also notice the quavering is worse in the morning, so maybe something with excess cortisol. Many thanks for your input. Any other input is most welcome.

I'm new to this forum and new to the world of dysautonomia. I've had my symptoms for only four weeks. As I have looked around the web researching this, including here, I mostly see dysautonomia associated with rapid heart rates. The T in POTS. But I get slow heart beats, 50s and 40s every morning and often in the evening as well. Is this symptom consistent with dys as well? And more recently, I've started to get tremors, arms, legs, trunk. I haven't seen tremors on the dys lists, but it came around the same time. From what I've seen this all seems very vagal to me, because of the brady stuff, and the wide range of symptoms, digestive discomfort, etc. Eating is also a trigger for me. I tend to get these symptoms after eating, especially after eating earlier in the day. This is all very confusing and terrible uncomfortable for me. Any thoughts?

I am new to all this, don't have an official dys diagnosis yet, but I'm convinced that I've got some kind of ANS disorder, having to do with the vagus. My doctor thinks so too, but he's running lots of tests for other things too. But for me, I always have the problems in the morning. I might have them other times of day, but morning are pretty much reliable. About half an hour or so after I wake up, I suddenly feel terrible, weak, light-headed, I go into bradycardia on and off, my pulse goes as low as into low 40s and kind of bounces around in the 40s and 50s usually for a couple of hours. I also get tremors. Anybody else get the tremors? Like several of you, I tend to be a little better in afternoon and sometimes it comes back in the evening. This is all so new to me. It all started about four weeks ago after I tapered off a PPI. I got back on the PPI, but the symptoms have stayed. Any insights would be most welcome.