EricCartman

Can I just buy a compression stocking at Walmart, or do you need a special kind for POTS? Does the amount of pressure matter at all?

Is chronic low blood pressure a symptom of POTS? Can someone have POTS if their heart rate never increases as it typically does with POTS patients?

Hello everyone, new to the forum, hope to get some answers! I have had difficulty getting a diagnosis. Have had 20 years of what doctors generally called CFS, with the following symptoms: Intolerance of exerciseBrain fog and cognitive impairmentsevere fatiguefrequent urinationtremors (onset recently)upset stomach and diahrreamuscle and general body painchemical and EMF sensitivitySo in November 2014 my neurologist took my heart rate standing and lying down and said I had POTS because my heart rate increased. Then an electrophysiologist a few months later did a Tilt Table study where I started screaming and passing out after receiving a small amount of nitroglycerin. She said my heart rate never increased, so she diagnosed me with neurocardiogenic syncope. While I understand the forum rules do not allow members to diagnose each other, I am wondering if anyone has had a similar experience with these varied symptoms and these diagnoses.

Thanks for the responses. I will need to investigate the Levine Protocol further. Right now, I can only do non-cardiac exercise such as weightlifting. I can lift lots of weights, but not survive an exercise bike for 5 minutes. Anyone else share that experience?

I have been unable to find any physician or physical therapist that knows anything about the exercises one can do to treat POTS. The only thing I can find is this website with some exercises: http://www.dysautonomiainternational.org/page.php?ID=43 Besides the rudimentary exercises on thisw website, are there any other well known exercise programs to treat POTS? Thank you for your help.