Hello all, I have recently joined this sight to get some support and glean from all your valuable insight. I have been undiagnosed for about 7 years after a terrible case if mono. Since then I have seen countless doctors and been told I was a mystery, a crazy person, and that "of coarse your tired, your a mom!"... But after years if getting progressively worse an infectious disease doctor finally recommended a tilt table test! Passed out within 8 mins, finally something tangible that a doctor can look at and have "proof" that I was sick! Fast forward a few months and have seen a cardiologist to rule out any serious conditions with the heart, stress test was terrible! But Heart looks pretty good! However my blood pressure didn't increase the way it should in a typical treadmill test. Cardiologist said that was typical of dysautonomia! Started on florinef two weeks ago and feel amazing!!! I am surprised since I was mentally prepared to feel like a zombie the rest of my life! Questions are: who manages your care? How did you go about finding the source of your POTS? Right now I have just been diagnosed with generalized dysautonomia and that my tilt table was indicative of POTS. I would love to know what kind if possible, cardiologist said something about low blood volume. As you can see I am uneducated in this, and have a lot of learning to do! Thank you for your time, wishing you all wellness!