sarahjanewebb

Thanks for your replies. A daily headache sounds pretty unpleasant SarahJane. Hope you get some improvement.

I think I probably will ask for a referral to a specialist. I'm dreading going back to my GP, I'm wondering if I've become a heart sink patient to her. During the last consultation, when I mentioned that I have tingling in my face she suggested it might be my teeth. (Of course it's not my teeth, what is she thinking!) I felt she is really not on the most helpful wavelength. I was so gobsmacked that she said that I didn't actually say anything back to her. Also my brain doesnt work that fast at present to be able to reply to things people say articulately.

How I wish my problems had turned out to be related to my thyroid or diabetes - how simple that would be.

I can completely empathize with this I feel I am a heart sink patient I attend the doctors monthly for my sick notes, with various different new symptoms. Many of them I am sure are from the new meds. I feel I am getting no empathy from the doctor see is doing no research into my condition (has already mentioned that I am the only patient in the surgery to have the condition) I have severe brain fog like you so get easily distracted I can go in with a list and even forget I have taken it

It isn't easy and I feel I am constantly fighting an uphill battle. Fight for your referall I know I am going to !!

Hi I am on the Berks/Bucks border. I have suffered with a NPDH (New Persistant Daily Headache) since Nov 2011 and was seeing a Neuro it was following a second opinion that he noticed a change in my BP and HR and sent me for my TTT to the Hammersmith Hospital where it was found I had pots

There is a consultant there by the name of Dr Boon Lim. I am yet to meet him, however I have met with the syncope nurses who were lovely . I am hoping to get an NHS referall now (long story wa covered under private healthcare! Not now) but as you can imagine this can take weeks.

Hope you find a consultant who can help x

Hi am very new to this site and to my pots diagnosis.

I live in Bucks. Have been seeing Dr Weatherall under Neurology for my Persistant Headache and he felt I may have something wrong and sent me to The Hammersmith for my TTT where ignore my diagnosis.

I am the only person at my GP surgery who has the condition and they have no clue what to so with me, so that's great :-/. So pots websites and forums like this are my constant source of support right now

Nice to know there are a few others dotted around the uk

:-)