sarahjanewebb

I can completely empathize with this I feel I am a heart sink patient I attend the doctors monthly for my sick notes, with various different new symptoms. Many of them I am sure are from the new meds. I feel I am getting no empathy from the doctor see is doing no research into my condition (has already mentioned that I am the only patient in the surgery to have the condition) I have severe brain fog like you so get easily distracted I can go in with a list and even forget I have taken it It isn't easy and I feel I am constantly fighting an uphill battle. Fight for your referall I know I am going to !!

Hi I am on the Berks/Bucks border. I have suffered with a NPDH (New Persistant Daily Headache) since Nov 2011 and was seeing a Neuro it was following a second opinion that he noticed a change in my BP and HR and sent me for my TTT to the Hammersmith Hospital where it was found I had pots There is a consultant there by the name of Dr Boon Lim. I am yet to meet him, however I have met with the syncope nurses who were lovely . I am hoping to get an NHS referall now (long story wa covered under private healthcare! Not now) but as you can imagine this can take weeks. Hope you find a consultant who can help x

Hi am very new to this site and to my pots diagnosis. I live in Bucks. Have been seeing Dr Weatherall under Neurology for my Persistant Headache and he felt I may have something wrong and sent me to The Hammersmith for my TTT where ignore my diagnosis. I am the only person at my GP surgery who has the condition and they have no clue what to so with me, so that's great :-/. So pots websites and forums like this are my constant source of support right now Nice to know there are a few others dotted around the uk :-)