Andrie

Im baffled as to why people with DA dont universally swim, even if there is some hardship involved such as driving further to a pool.

Its a weightless aerobic excercise and addresses all POTS obstacles such as pooling, constriction, etc.

It also keeps you cool instead of overheating.

And the sequential rythmic breathing seems to regulate heartbeat and BP.

In other words, its the perfect excercise for POTS.

Swimming kills my shoulders - I have probable EDS and my shoulders, wrists, and ankles are problems for me. Swimming has never been something I've been able to do for exercise, even as a kid.

Keep in mind there are two separate programs at Vanderbilt. There is the research program, and then the autonomic clinic.

Have you ever had a positive TTT? It is possible that you have something going on other than POTS or another form of dysautonomia. Have you monitored your HR at home and gotten orthostatic tachycardia?

It is very frustrating to feel ill and not know the cause.

Can you say more about whay found out via email?

I'm hoping to get my paperwork faxed in today or tomorrow. I emailed them last week when completing the orthostatics portion of the paperwork, and that led to a several hour discussion via email with them about what happens, how long it takes, etc. It was rather enlightening. I showed everything to my doctor as well, and he keeps thinking there's no way I DON'T get in, but I'm rather not up for counting my ducks before they hatch. All I know is these past two weeks, I have nothing to lose anymore, and it's frustrating to keep doing the same thing over and over.

Just because I'm going to Cleveland Clinic on Tuesday, doesn't mean I'm not giving up on going here. I think both would be beneficial for me in different ways.

If my freaky case of POTS (in the words of my doctor, lol) can help them, so be it. If they can help me, even better.

And I'm an idiot, every time I search, I seemingly get nothing. But I'll keep trying, maybe I just haven't found it yet, lol.

Do you stay on your medications for the study, or do you have to go off of them?