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Andrie

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  1. Swimming kills my shoulders - I have probable EDS and my shoulders, wrists, and ankles are problems for me. Swimming has never been something I've been able to do for exercise, even as a kid.
  2. Keep in mind there are two separate programs at Vanderbilt. There is the research program, and then the autonomic clinic.
  3. Have you ever had a positive TTT? It is possible that you have something going on other than POTS or another form of dysautonomia. Have you monitored your HR at home and gotten orthostatic tachycardia? It is very frustrating to feel ill and not know the cause.
  4. Do you stay on your medications for the study, or do you have to go off of them?
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