npbarr2

My son was diagnosed with POTS and Mast Cell Disease last month. We were told to do the cardo and strength training, increased fluids and salt, low carbs and sugar, and started him on Midodrine. I haven't found many stories or information on boys with the disorder. I'm wanting to see if there are any differences. He is having such a hard time, even with all the changes above. Having, Tourette Syndrome, Asthma, Aspbergers, Acid Reflux, etc., etc., etc., too, is really bringing him to breaking point. Also, one thing that is really bad on him is a rash that covers his face, chest, and arms. Does anyone else deal with something similar to this? They have been trying several creams at the dermatologist, but none have helped yet. Thank you for your responses, and I am happy I have found you guys!