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About Goldstec

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  1. DINET has always been grounded by the principle of support. In alignment with our mission of support, we believe Black Lives Matter and support organizations, movements and people working to reduce racism, discrimination, prejudice, violence and systemic injustice in our country and throughout the world. And, as an organization that believes wholeheartedly in advancing healthcare for our members who live with dysautonomia, we must acknowledge that we have not done a good job recognizing the inequities in healthcare experienced by Black Americans day in and day out, including those who l
  2. Full text pdf link below: 2020.03 V2 COVID-19 tips_CGoldstein.pdf
  3. WE NEED YOUR HELP. This is a scary time, to say the least. We know all of you are doing your best to stay as healthy as possible, but there are so many factors out of our control. As we are all trying to figure out how to navigate this pandemic, particularly when we live with dysautonomia, we have found ourselves asking “What can we do to help?” At DINET, we think our best course of action is to keep investing into our network as much as we can. This is a time when our virtual community is more of a strength than ever. Remember that… · It is okay to be scared or u
  4. Claire is a thirty-six-year-old mom, with a refreshingly real disposition, shares her experiences of living with POTS. Her dysautonomia is accompanied by gastroparesis, irritable bowel syndrome, hypermobile Ehler-Danlos Syndrome, polycystic ovary syndrome (PCOS), and endometriosis among others. She worked as a Certified Dental Assistant for ten years before she resigned due to disability. Though Claire recalls she has probably had POTS and EDS for many years, she officially sought a diagnosis at age twenty-eight. At the time, she was working full-time, married, and preparing to start a f
  5. By Chelsea Goldstein Meet Erin. She has talents for research and storytelling, both of which helped her excel in her work as an investigative journalist and managing editor of several magazines. When she began her career, she did not know that these talents would be central to discovering, in her mid-thirties, critical diagnoses including fluoroquinolone (antibiotic) induced dysautonomia, hyperadrenergic POTS, and neuropathy, that made all the difference in her health. Erin’s story shares some common elements with many of our experiences. She had a swift and severe reaction to a co
  6. Isabelle is a young, creative entrepreneur but that wasn’t always her plan. She excelled at tennis as a preteen and hoped to pursue it as a full-time career. This seemed possible until an episode of heat stroke during a tennis match caused her heart rate to be sustained around 180 beats per minute for several days thereafter. She knew something was wrong having been a relatively healthy young woman prior to the episode. However, the doctors in the emergency room she visited told her that her symptoms were “all in her head,” and they dismissed her heart rate as a byproduct of being an anxious,
  7. How to prepare for an ER trip or a visit to a new medical practice. Going to the ER or to a new doctor’s office can be a stressful experience. The obvious reason is that we are sick. Sick enough to need an ER or sick enough to need another consult. But the other more difficult reason for the stress, is the reaction we get from the medical professionals we go to for help.. The best way to help your stress level and theirs is to be prepared. Let’s face it, it can’t be easy for the ER team, the doctors and nurses to have a patient in front of them talking about illness and treatm
  8. Hello all! We are looking for someone who would like to share her experiences with Dysautonomia in our next newsletter. Particularly, we would like to interview an individual who is currently going through (or just went through) the process of getting diagnosed with Dysautonomia. You do not have to be formally diagnosed to be featured in this article. We hope to share your story in an effort to connect our readers through shared experience. The process is simple, and will only take about 30 minutes of your time. Please respond below if interested and share a very quick summary (1-2
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