LastUnicornLady
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Posts posted by LastUnicornLady
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Hey, everyone! I've started having some pretty nasty migraines this past week, pretty much every day. I don't think it's a normal tension headache, because it's not responding to Advil at all, even though I normally do pretty well. I took the maximum dosage, and saw absolutely no improvement. Also, i've had a lot of light/noise sensitivity, and it just feel different from a "normal" headache, ya know?
I was wondering if migraines were common with POTS, and what you guys do about it. I have a cardiology appointment this week, so I guess we'll see what he says. We may end up being referred to a neurologist, and I guess that if he can help, we'd be happy to go see him. But we don't want to keep bouncing from doctor to doctor all the time. I mean, I'm a little worried about raising red flags for Munchausen syndrome.
Ah, well. I guess I'll give you all an update after the appointment. Do you have any tips for dealing with these pretty debilitating migraines until then??? Any advice is appreciated! Thanks all!
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I may fit the thin and pale stereotype, but not tall. At 5'4", I'd hardly call myself tall. Before POTS, I weighed about 113-114. Now, after taking Florinef for several months, I'm at 103-105. Humph. I never had much weight to begin with, and I actually managed to LOSE weight on a steroid. 10 lbs. that I never had to spare! Some people just scoff when I complain about weight-loss. I guess they don't really get that skinny girls have problems too, and I sure don't try to lose weight. (No, I'm not anorexic.)
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It's really interesting to read everyone's responces to this, and I hope it made you laugh a little. Sometimes you just need to laugh at the absurdity of it all. I mean, here I am, feeling the worst I've ever felt in my entire life, and you're telling me I'm imagining it? I had never experienced this extent of exhaustion, pain, etc. until now... I could never have thought it up on my own. Or when they "try" to relate, but it really only ends up feeling like they've implied my problems aren't really a big deal. That they're normal, day-to-day issues that everyone has. Or when they tell you that you just need to exercise more... WHAT?!?! I was an icredibly active tennager in the prime of health, when all of a sudden I could barely make it through one class. What the heck?! I was excercising three times a week before I got sick. How would "just excercising" or getting out more cure me of the very illess that took away my althetic abilites??? I don't get it...
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What are some of the most frustrating things about people's misconceptions about POTS and dysautonomia?
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Hello, POTSies. I'm kind of new to this whole thing, having only been diagnosed with POTS a few months ago, and we're still struggling to find the right medication for me. I've been having trouble sleeping for more than a week now, and I was hoping you guys would share some tips for falling to sleep faster, and getting a more restful nights sleep. I know sleep issues are common with POTS, but I don't really know how to start trying to fix them. If possible, I'd like some home-remedies, natural tips, etc. I want to try things like that before I try any sort of medication.
Also, I've heard that elevating the head of your bed helps some POTS patients, and I was hoping you could share some low-budget ways of doing that. I tried just using multiple pillows, but I'm not sure if I was doing it wrong, or if it just doesn't work, because it only served to give me a neckache...
Thanks everyone!
Migraines?
in Dysautonomia Discussion
Posted
Thanks everyone! We had a little confusion with my doctor's appointment, because somehow we managed to get the wrong date... Thankfully the office called for a confirmation! I'll be bringing up the migraines when we go to my appointment tomorrow.
I glad (???) that this is a common symptom. It's nice-ish to know that I'm not the only one who's experiencing this. Liz, I don't believe I have BP issues, but I guess they'll be checking on that at my appointment. I suspect we're also going to get some bloodwork done to check my electrolytes and all that checked. I guess I'll have to post an update sometime next week, as I will be unable to get to a computer over the weekend.