gjensen

For different reasons, I am having to read the ingredients for everything I might purchase. I have grown used to it, but I did laugh at myself for a time. Concerning salt, potato chips did help me. Then simply adding it to what I did eat.

I also drank a lot of V8.

I found drinking large quantities in short durations was more helpful that sipping continually sipping throughout the day. Especially in the morning. I would drink 24-32 oz. before I would even leave the bed.

Have you tied compression stockings? They did help me a little.

All of it is a series of small victories rather than a single big victory.

The monitoring may help paint a picture of what you do experience from day to day, though it is only identifying a single symptom. And what might go along with that symptom.

Some people are helped by it and others. Even some that would be considered "hyper". It is just that others do not tolerate it well at all.

It is not helpful for a diagnoses in my opinion. People that are not sick are going to have a variety of responses that could only confuse the interpretation of the numbers.

On the other hand, I tolerate it because I have to. It is in and out of your system quickly. I take it almost every day. I had to take it cautiously, and still do, but to a lesser degree. I have established a slight tolerance for it.

Clonidine helped me early on. It more directly interfered with the cause of my insomnia.

I do not know why some still give nitro. I did have nitro on my first TTT.

I have to take nitro for days consecutively. It is one of the few meds that I have been able to take. My nose, throat, and airways are the most reactive. It seams that nitro being sublingual helps me.

That said, I was sensitive to it. Most with POTS would be. It could be that you have an exaggerated response. BUT, you are in good hands at the time. You would be fine.

You can expect a headache, a heaviness in the chest, shortness of breathe, an accelerated heart rate, and a sudden drop in blood pressure. It works fast, but it is over fast.

It is impossible to predict. It could be a blessing or a curse. At this point, you may as well flip a coin.

You are being reasonable to consider whether or not more norepinephrine in circulation is a good idea though. It is something worth talking to your doctor about.

It makes all the difference in the world to be able to see a doctor that specializes in autonomic disorders. They know what causes to check for, and they get it when you say it.

The illness is difficult. The process is difficult. The relationships can be difficult.

I can relate, and I am sorry. Be encouraged though. As tough as all of this is, you will make progress.

"Trading symptoms for symptoms."

I can relate. I do not like the slower HRs either.

What testing did you have, and what were the actual results? Where did you have the tests done? Maybe I missed that somewhere?

Diltiazem (sp?) helped my runs of SVT. It took very low doses, and did not hurt my BP at those low doses.

My main chest pains are coronary spasms, and nitro does relieve the pain. I have to be careful not to drop my BP too low when I take it.

I do get what I call POTS chest pain, but it is more of a general pain and pressure.

Nova, welcome. The ladies here are kind and helpful. I wish you well.

It costs more, but if it is a practical option, it can be a value added product. Here, it costs me more than any benefit I might receive. There is not anyone selling it in my immediate area.

Most States inspect and tightly regulate raw milk sales. They are often held to a higher standard. I would feel comfortable purchasing raw milk in these States, and from someone that I know.

Mostly, I get my worst chest pains in the transitions from sleep to wake, and wake to sleep.

Along the way (this is ever evolving and changing for me), I have had periods of time where I experienced what you describe. Just the act of laying down would trigger it. I would need to get down from being up too long, and upon laying down, need to sit back up. I would get some relief from the chest pain upon sitting up.

There are some adjustments that our vasculature makes resting, or exercising. Certain arteries constrict while we are at rest, and many vessels relax at rest. Opposite responses, and appropriate responses. During exercise they will do the opposite. One relax, while the other constricts. It is all about maintaining a balance of sorts. It seams that for some of us, some of the time, these hemodynamic fluctuations can be problematic.

I would say that our systems are challenged, and do not always respond appropriately. Some times over reacting, and under. I suspect that is what your experiencing, but it is my own theory, and I am no doctor.

These things are difficult to identify, and much of it becomes speculation.

I would discuss this further with your doctor, in detail, and ask if there is any ideas on how to manage it. If the pain goes away upon sitting up, it is not dangerous. You do want to be able to manage it, and for some of us, this is ever evolving.

Another thing that can cause chest pain laying down, and relief upon sitting up, is inflammation of the membrane around your heart. I do not believe that is what you are describing, but is something to be evaluated if the doctor suspects it. I am assuming this is a chronic problem, not acute, and you have been discussing this with a doctor.

Make sure that you discuss with your doctor, the possibilities that are not the typical structural problems with your heart and arteries.

I believe in raw whole milk from older breeds. The breed does matter. I also believe in eggs that are truly free ranged on quality forage, and not marketed as such (and sold at Wal Mart). I also believe in oily sea fish, and red meat.

I hope that the adjustments do no harm, and that they only do good.

This is great news, and I am sure a relief for you. I have followed your story, and this turn of events has put a smile on my face to.

Tyler, I can relate with many of your frustrations.

If you ever feel like it could be helpful, you are welcome to PM me.

The members here are very helpful and supportive.

These kinds of illnesses have a lot of symptoms, and many overlap those from others. To avoid going in circles, it is important to try to get on a clear path.

Have you done a poor man's tilt table test? That is what I would want to do first.

Some get adrenalin surges at night, and while they are asleep.

I intend to try Tumeric. Eventually. Right now, I am struggling to be able to get all that I need in my diet. I have not ventured into herbs, which I had not had good luck with. I would like to try it though.

I am limited to about 5 food items. Plain. LOL. I try something every day or every other day. Something will pass and then I will lose it. Chick peas were helping me stay going, but I started reacting to them.

I suspect that the steroids would over stimulate me. I have changed a lot recently, but I had trended towards being overly sympathetic.

For some reason I lost the POTS HR response, but still have low (and dropping) BPs. I am not sure where that is going.

I am going to need help managing the pain. I would not put the pain out of reach on a scale, but it covers such a large percentage of my body. I would say 60-70%. For some reason that makes it worse, and it messes with my head. Whatever causes the pain causes depression it seams.

I do not know Katie. I am skeptical (from experience), but I had not thought of hydrocortisone. Are you saying that some get some relief from the topical applications? I have not had any skin reactions, so I would feel comfortable trialing something of that sort. I am afraid that I will have to get something compounded to have any luck with pills. Heck, my diet has become very very limited.

Talk to your doctor, but they usually want you off florinef and midodrine for the TTT.

I am very sensitive to meds. I have mast cell lie reactions to many. I am commenting because my "nerve pain" is off of the charts right now, and I do not know what I could take. In addition the meds themselves, I seam to be reacting to fillers.

I am not petite. LOL. Though I am probably more than I used to be.

Has anyone heard anything? A PM is fine.