Laurie

Hello Everyone! This is my first post on this site. I was diagnosed with POTS last year in Sept. Shortly after that dx I was dx'd with a syrinx (a cyst in my spinal cord). Then came the Chiari, Tethered cord syndrome, and Ehlers Danlos Syndrome (EDS) dx's. I had surgery at The Chiari Institute in NY in June to release the tethered spinal cord, since then my POTS symptoms have gotten worse. I know my case is complicated but the great doctors at The Chiari Institute have found a link between these disorders, so I am thinking I cannot be alone in this. I am hoping to find someone on here that has a similiar experience, it is tough feeling like I am alone with these conditions. The doctors at The Chiari Institute are now recommending I have cranial-cervical fusion. I have created a blog for my family and friends to help them understand my conditions, I will post the link here for anyone who is interested. http://laurieyeh.blogspot.com/ Laurie