Mary T

He's actually sending her to a neurologist at the University to rule out Parkinsons'....we just got the call yesterday. But we've been told Grub doesn't have a lab, so he'll just be watching the progression of symptoms. Mary

doctorguest - how do I find such a doctor to diagnose my mom? Mary T

My mom was recently seen by Dr. Grubb (who was incredible!) and although he is not certain what she has exactly he is leaning toward Pure Autonomic Failure. I'm a mess. So is she. So is my dad. Can someone give me some advice about how to cope? My dad thinks she needs to be pushed and expects her to still cook and do that stuff....She is so chronically fatigued and sad. He says we (her daughters) "spoil" her. Duh.....I'm looking for any support I can get.....No one seems to understand her situation because she doesn't look "sick" ...at least to anyone else. I think she looks terrible - lost weight, fatigued, no balance, weak, etc, etc, etc. I live out of town on top of everything. There's something wrong with her eyes too, and my dad took her to a doc who said her eyes were fine but I subsequently discovered she has macular degeneration and he didn't tell her "because it wasn't that bad". That was fine with my dad! I think she needs another evaluation - she is having trouble seeing! I'm so frustrated! Can anyone help? Thanks Mary