Iheartfrogs217

Awesome! Do I have to talk to my doctor in order to get B6? Thanks!

Hey guys, just noticed I experience tons of weird palpitations all the time besides regular tachycardia. Just wanted to know if anyone else did too.

Highest recorded on a holter: 160 However, I know it's been higher than that. When I have bad tachycardia "episodes" I sit down, take a deep breathe in, hold it, and then let it out, and then repeat. Then I proceed to slowly lay down and relax and drink as much water as possible. It seems to help quite a bit!

I can't drive more than 20 min. Without feeling like I'm going to pass out or feel really dizzy. I usually avoid driving at all costs for that reason. At least I had POTS trouble shortly after I got my license. Otherwise I probably won't have one.

Thanks for all the advice everyone! I tried taking NyQuil Sleep and it turned out disastrous. I felt so much worse after taking it, so I guess it's back to the drawing board.

Looneymom: Do you know if the active vitamin (B6) that you're taking about helps with palpitations too?

Not much to add here, but I know the feeling you're talking about! I have no idea what it is, but I'm still here to talk about it. Lol. I hope all goes well at your cardiologist appointment and please post if they give you an answer as to what they think it is. Take care!

Hey guys,

I haven't been on here for awhile because I've just been trying to ignore my symptoms, but this one bothers me. I haven't been able to fall asleep right away because each time I start to doze off my heart starts doing palpitations and then I wake up for awhile. Then I try to go back to sleep and the same thing happens. It just seems like a never ending cycle until I finally pass out at 2 or 3 AM. I went and saw a cardiologist and he said everything looked fine. Although he did say right before I fell asleep my heart rate jumped to 160. In the middle of my sleep my heart got down to 42. Does this happen to anyone else? Do you think it could be POTS/Autoimmune related? Thanks for your input!

Thanks for the responses and info everyone! It really helped take care a lot of my fears of this being something dangerous.

Thanks for the info! I'm not exactly sure what the actual rate was. All I know is that it was slow and hard and it made me feel faintish temporarily. Does it feel like you're going to faint when this happens? The good thing is, is that it usually goes back to normal within five min. or so.

Hey guys! Today I got scared suddenly because my cat knocked over an object in a different room and I noticed that my heart started to beat super slow and hard. I've noticed this happen a few other times when I'm scared suddenly too. However when I'm scared because I have to publicly speek or something like that it beats super fast because it took more time for the adrenalin to release and build up. Is it normal to have your heart beat slow and hard when suddenly scared? Does anyone else experience this? Could this be something related to POTS?

Yes stairs are horrible! I have two flights of them to climb at school and I become soo winded by the time I'm up! However, I think using them is still important to build cardiac and leg muscle strength.

Hi Freaked,

I'm so sorry to hear about your fear of exercise. Know your not alone and, it's not easy to overcome, but it can be done! I, too, have a fear of exercise because I'm afraid of having a heart attack or sudden cardiac death, so I completely understand how scary things can get! The good news is, is that this most likely won't happen. Matter of fact, exercise helps POTS symptoms from what I've been told and experienced myself. The two exercises that help me are stationary biking and swimming. Swimming makes me feel great when swimming and when coming out of the pool. Stationary biking makes me feel terrible while riding, but afterward I feel great results!

If you don't mind me asking, do you get heart palpitations or irregular heart rhythms a lot? Because I do and that's why I'm afraid to exercise.

Hang in there and know you're not alone! Talk to you soon!

I wish I had an answer to this one, but I don't. :/ However, if you find out please let me know, because I have irregular rhythms and palpitations ALL the time. Like JenniferInOhio said, I think it's normal in the POTS world as well.

I've been having a little bit of trouble with this question lately. Just a lot of anxiety about symptoms, particularly heart palpitations, so reassurance would be nice. Thanks!

Rachel/looneymom:

First off I'd like to say sorry about your and your son's hard trial with POTS. I can't even imagine going through what you are going through with your son, with one of my family members. This morning I thought I had it bad with POTS because I had so many heart palpitations, but I am, thankfully, still able to walk. I hope the doctors can treat it soon so he can walk again! It's people like you and your son who are true warriors. I will be praying for you and your family and I hope they can find a cure for this nasty syndrome soon! I'd also like to thank you for the advice on the "at home test" for POTS. No, my doctor didn't even do the poor man's tilt table test. We were just sure I had it based on symptoms and rise in heart rate. Technically I diagnosed myself. I brought in the proof and definition of POTS to my Dr's. office and she said I had it based on the definition. Ever since then I have believed that it was true and living with it since. So now I'm stuck trying to find a cause, if there is one in my case. Like katybug said, it could just be idiopathic. How did you figure out your son's POTS might be immune based?

Thanks for both of your responses!

To Rachel/looneymom: No, I have not had the tilt table test. Matter of fact I have had no testing done. My doctor was sure I had POTS just because of the extreme tachycardia and discoloration of my feet and legs, along with the other symptoms I have that all correspond with POTS. I have not had testing because we don't have insurance and we can't afford it, because my dad is self-employed and my mom is a stay at home mom. Although, we are in the process of thinking about getting tests done just to make sure there isn't an underlying condition. If you don't mind me asking, how much does the tilt table test generally cost? Thanks for your help!

Hey everyone!

I know that the cause of POTS isn't really known, but I saw a site today that said that POTS HAS to be caused by something. Is that true or has anyone else heard this? Also, the doctors really can't find anything else wrong with me, so I was wondering if adolescence could be the cause of POTS in some patients? I started having symptoms when I was around 14 or 15 and now I'm 16. Any information anyone may have on this would be greatly appreciated! Thanks!

I believe that cardiac issues and POTS relate completely! I was diagnosed with POTS about two years ago and before that I didn't have palpitations or irregular rhythms, besides the average PVC here and there. After the diagnosis of POTS I began having tons or palpitations and irregular rhythms. None of them fatal, to my knowledge, even though they feel like it sometimes. :/ I also know of some other people who have POTS who have fainted from irregular rhythms. I hope that answers your question! God bless and take care!

Dear Charlotte1,

I noticed that you said you have bradycardia. Is it caused from your POTS? I have been having trouble with bradycardia lately and I was wondering if it was just another awful symptom of POTS? How low does your heartbeat get? The lowest mine has EVER been is around 43. I'm really concerned so any info you could give me would be greatly appreciated! Thanks so much!

16

Thanks for all of the great information everyone! From what everyone has said it just seems like bradycardia is another annoying POTS symptom. It's brought me lots of concern that it's not just POTS, but it's very comforting to know that other people have experienced this at one point of another. It also concerned me because I'm not on any medications that would cause it. I was also very scared that I would have to get a pacemaker at 16! Does anyone else with this problem have a pacemaker or is that a bad idea to get one with POTS? Thanks again for all of your help. I truly appreciate it!

Hi peace!

Thanks for all of the great information! It's a lot more comforting to know that someone else experiences this too! Yes, I do experience chest tightness and sometime shortness of breath. Sometimes it feels like I can't get my heart rate higher, however it usually goes up if I walk upstairs or something. Please let me know how your appointment goes at your cardiologist and what they suggest! Thanks again for your advice!! I'm also sorry you have to go through this too! I hope your cardiologist can give you some great answers. Talk to you soon!

Hi Alex! I, too do not take beta blockers, and I've been finding that I have a heart rate of 43 when I'm laying in bed. I'm assuming its just another POTS symptom but I'm not for sure. Im really afraid of greeting a pacemaker as well because I'm only 16! Please let me know what the doctors say about your bradycardia! I'm very curious as well. I hope you feel better! Thanks.

No, I am currently not.

Everything listed above and bradycardia and purple limbs from blood pooling. Great list though!