darpa6132002

Hello all, I’m new to this diagnosis and new to these forums. Once a suspected cerebrospinal fluid leak, now “borderline POTS.” I have a constant (thankfully) mild headache, blurry vision, and light-headedness. These are all 100% positional – there all the time when I’m standing and completely resolved when I lie down. These came on acutely one night 6 months ago and haven’t left since. I saw a neurologist, who told me that orthostatic headache = csf leak. I had CT and MRI scans that were negative, and then three blood patches, none of which helped me at all. After the third patch, I asked my neuro to refer me to a cardiologist, who set me up for holter testing (negative) and tilt table testing. I was told that in the tilt table test I qualified as "borderline POTS." My heart rate increased from 62 supine to 94 upright within 10 minutes, though my heart rate went back down after this initial jump. The cardiologist recommended a trial of beta blockers, though he wouldn't say with any confidence whether he thought that they would help my symptoms. Prior to the tilt table testing, several physicians have measured my heart rate lying down vs. standing, and none of them noticed a striking increase. I've also measured my bp and pulse at home, and I can stand for hours without my pulse or bp doing anything screwy. I'm not particularly fatigued or exercise-intolerant. I'm just light-headed every moment I'm standing up (except when I exercise). Any advice on the POTS diagnosis? Any ideas on other types of dysautonomia that would cause a positional headache/light-headedness? Thanks!