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Willis

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  1. Does anyone know if 717 is considered a high norepinephrine level. I was not real symptomatic during the blood draw. I am assuming norepinephrine levels would be higher the worse you feel. Thanks!
  2. Thanks for responding! I have been a competitive runner for over 10 years and ran a 4-mile in September despite it taking 7 months to get there. I used to be able to run 7-8 minute miles at a lower heart rate and for much longer than I can now do 11-12 minute miles. I have been through some dysautonomia testing with mixed results. I have passed the tilt table, but was having a good week with my symptoms. I know I do not have POTS because I know where my heart rate is at when I am standing and it is not significantly higer and my symptoms don't resolve when I lay down. Are there specific tests for hyperadrenergic issues. I feel like I also overshoot, but I don't know what test results would look like for that. My thermoregulatory test came back normal, but I know that they look for a lack of sweating and my normal pattern is to not sweat for awhile, get really hot, and then sweat profusely. So by the end of the 45 minutes I was soaked and there were no areas that did not sweat. I have other issues going on so they have not been able to just focus on dysautonomia.
  3. Hi, I am currently being worked up for dysautonomia. I do not get tachycardia upon standing, only during exercise so they have ruled out classis POTS. So far my test results have shown a few things. After wearing a holter they found my heart rate gets in the low 40s at night and up to 190 during exercise, this is after sticking to a strict exercise program for 7 months. My exercise test came back ok (other than the HR) accept for a blunted blood pressure response to exercise. I used to be a competitive runner, but if I try to exercise I am short of breath, sweat profusely and get weak and nauseous. Also my laying to standing norepinephrine was 237-717. Does any of this sound familiar to anyone? I am most symptomatic after I drink my morning coffee, even with added protein and again in the late afternoon. This all started almost two years ago. I would have severe disabling symptoms for several hours and then they would disapate and disapear by late evening. Now the symptoms are not as severe, but can be more constant. I have other issues going on that point to a more systemic problem, but this is a piece of that puzzle. Thanks!
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