tpapik

who diagnosied you with EDS- a firend of mine things i have it . Pale skin, my elbows are hypermobile, I popped my hip out of place in 2010 otherwise I was a gymnast for 18 years but not nearly as flexible so i dont know

I was having alot of spine pain- i went to the ER Xrays negetive and for some reason this infectious disease doc i work with i was tlaking to him about my ANA 1:80 speckeled. and he goes "I think you have mixed connective tissue disease" what the heck?!? all he did was spin me into another worry

just want to know if anyone has good info on it or should I just put it in one ear and out the other , hes not even a rheumo. my symptoms are

tachycardia

weight loss

gurgaly stomach.

spine pain.

........ le sigh i hate workin in hospitals sometimes

and this is why i think garlic, ginger, bone broth are all good! did you know that autoimmune all starts in the gut..... thats what my doc said. heal the gut heal the soul <3 wwe are what we eat/ thats what i think anyways

so I got an ANA result back today 1:80 speckled pattern. so does this mean good indication of lupas or what ? :-(. im not sure what to go from here..... do i see a rheumo now? blah . this is a never ending case with POTS

welp hemaglobinA1c normal- no diabetes.........still no answer

I Think thats part of it but I do know im not digesting food well. I have IBS like symptoms ever since Nora passed away-- its been really weird. beeing checking my sugars and they been good so i doubt its diabetes......

just started using coconut oil too :-) I drink almond milk but may do both almond milk and coconut milk , why not

I just bought my own glucometer meter to watch it while i wait forever and a half to see if this is part of the problem

boymommy sorry no- I am not nursing - I lost my baby due to her prematurity

if I don't see improvement soon, I am going to talk to my primary doctor to atleast run some tests for diabetes or somesthing- my dad is borderline so was my brother and grandfather HAD diabetes but they all were overweight...... BUT its possible! i never had the sugar test when i was pregnant bc nora came too early

Okay- I know I had a premature baby last week of October , I had a dr appt on monday and the nurse said since december I have lost 11 lbs. at this current state im back to prebaby weight. exactly to the pound. my question is this: does anyone else always feel like their hungry (like me) , and are ALSO losing weight for no reason? I can eat and eat and still feel hungry

thyroid has been checked. ive had a colonoscopy and EGD. -nothing found at all other than gastritis

can stress cause this?

or just POTS?

hormones from pregnancy still?

...something?

love coconut oil put it in a smoothie cook with it

heres my update and im on her same lines..... but just started ....so im still SICK SICK SICK

http://potsiegirl.blogspot.com/

yeah the first thing I thought was EDS....... hum

yea maybe theres an underlying blood clotting disorder. thats the first thing my doc did after pregnancy was a chest angio to look for blood clot . since it was bed rest for so long. glad your on coumadin now , keep up with the treatment! yay for heparin drips and coumadin glad your better.

its probably going to take more than just one but I have a blog and I will definatly be posting my expierence! - my blog is just my expierences and being very natural..

http://potsiegirl.blogspot.com

well all came back negetive I guess thats a good thing.. . ooooh the testing :-) biofeedback tomorrow

LOVE PALEO!

anyone has had biofeedback ?

I am having my first biofeedback appointment this friday at 6:30 pm wiwth INDIGO biofeedback machines. my first appointment is 2.5 hours with follow ups being about an hour. I am curious to those that had biofeedback how much it helped? Right now my symptoms are tachycardia upon standing without Lightheadedness dizziness. Extreme Fatigue. pinprink feelings and some muscle facculations *spasms*

My biggest goal is to get OFF my betablocker- I do not like Meds (even if I am a nurse) I hate pharmacutical meds and want to be as natural as can be! which for me right now Means RAW multivitamins (not cooked and baked), Yoga, meditation, counseling (do to the loss of my baby) , and PALEO diet. right now im taking High dose of 70mg lopressor BID . and I want OFF! I am determined. so anyway just wondering what others had expierenced with Biofeedback-

i think I may have Hypermobilitity possible EDS III (my own personal diagnosis lol) - I fit it. both elbows hyperextend ALOT but none of my other joints :-/ blonde hair blue eyes. fair skin.... just makes sense. if the docs cant help me - im helping myself. and this is coming from a girl that regularly goes to the clinic in cleveland.

Though I am starting to do cardio rehab 3/21 so that should help! I hope.

Tiffany

found one!

Okay. I know biofeedback is not covered by insurance; atleast for me. Does anyone know any biofeedback Docs in NE Ohio that will take patients willing to pay out of pocked? how often does one usually go? and much does it cost - ive heard REALLY good things about it.

-THANKS

What is that?? I Googled it , and all I can find is that its a panel looking for Cancer ?!?!?! What the heck? and im scared - because I go to the cleveland clinic , I have mychart , and i can see the results as they come in... i am soooooo worry to see the results and have no idea what to think. Anyone know any better what this test is . ?

can clonidine cause muscle twitches? mine arnt bad or painful, but just suddenly my calf will twitch or my wrist or my upper arm its weird

I absolutly LOVE it! thanks for sharing. im 26 diagnosed in november , and had it it november so quick diagnose for me and hope to turn from negetivity to PURE Positive. I think thats half the battle- i am determined NOT to degrade anymore than I am - and GET BETTER@

It seems when one symptom gets better I get another. I tried searching on here with not much luck so im starting a new thread. I am in the process of being maybe diagnosed with SFN. Lately I have had more energy, sleep well, no more chest pain (I had that for a while but think it was my birth control I stopped that and its gone) , no more nausea really...

But i started to have Muscle spasms or medical term for it "Muscle facculations" does anyone else with POTS have this symptom? It is a little concerning but not sure what to take of it.

If you answered in the poll "Under certain circumstances" what do you find may be causing it?

Thanks!