Tobiano

Thanks for sharing!

badhbt

I also work in the industry and found it infuriating that some of healthcare practitioners I was interacting with seemed to lack empathy, professionalism, and basic listening skills. It must have been incredibly frustrating to feel like you had to sell your situation to doctors you knew personally. I agree that finding a knowledgeable doctor who is willing to work with you is so useful (and honestly the way things should be).

As recommended by my cardiologist, I take sodium chloride capsules. I can’t tolerate taking the capsules whole so I break them open and dissolve them in my water and sprinkle them on my food. I find that it’s easier to track my intake with the capsules, rather than table salt.

Hi – I’m new here but have been lurking here for quite a while. I have undifferentiated dysautonomia and Inappropriate Sinus Tachycardia, diagnosed within the past year. I am on my third specialist right now (luckily a very good one) but had several unhelpful encounters with doctors before finding this specialist. My GP did mention anxiety near the beginning, when I was still undergoing testing. This really made me mad because I knew something was physically wrong with me. I did begin to doubt myself and this actually seemed to make things worse. I would ignore early warning signs (kind of like …no I’m ok, I’m really ok, it’s nothing… and then bam…too late, full blown episode).

I agree with others here…if a doctor is not taking you seriously try to find someone else. I find it extremely frustrating when I feel that I am not being listened to.

Abbyw – These feelings still creep up on me sometimes, especially when having a string of ‘good’ days which is usually followed by a crash. When I’m functioning better I almost start asking myself why I can’t ‘cope’ like this all the time. But when I see my wildly fluctuating HR and BP data I see that it would not be at all possible for me to ‘make this up’ or just ‘make it go away’ by ‘coping better’. In fact, one thing that really stood out to me when I found this forum is just how many people here are tremendous copers considering the physiology we are living with.