Jlynne
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Posts posted by Jlynne
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Well I have been reading this forum for about
2 months I have been diagnoised with Pots
Secondary to eds and many other dysautonaumias as I read I kinda am cringing because I can relate to almost everything and it makes me afraid of how far I have to go. I have undergone over 25,000 in testing and feel exhausted and all I know is what's wrong not even what to do yet or actually where to start
I have been misdiagnosis
Poisoned with contraindicated medications
Lied to and totally misunderstood I cannot talk to my friends and family about how sick I am they just get scared and sometimes even mad my doctor says he will do everything he can to make me comfortable.
I figure this will be a place where I can talk about this and the seriousness of this without frightening anymore. I look forward to meeting everyone
And hearing about everyone's experience.
Just A Hello...super Newbie Here
in Dysautonomia Discussion
Posted
No doubt actually I need someone to help me know "what" I mean