Well I have been reading this forum for about 2 months I have been diagnoised with Pots Secondary to eds and many other dysautonaumias as I read I kinda am cringing because I can relate to almost everything and it makes me afraid of how far I have to go. I have undergone over 25,000 in testing and feel exhausted and all I know is what's wrong not even what to do yet or actually where to start I have been misdiagnosis Poisoned with contraindicated medications Lied to and totally misunderstood I cannot talk to my friends and family about how sick I am they just get scared and sometimes even mad my doctor says he will do everything he can to make me comfortable. I figure this will be a place where I can talk about this and the seriousness of this without frightening anymore. I look forward to meeting everyone And hearing about everyone's experience.
