lumpchp

When all you have to do for cardio is get out of bed...

Have they done any blood our a 24 hour urine to check for excess adrenaline being produced? I started having the same type of symptoms, and there is a very rare type of tumor called a pheochromocytoma which produces almost identical symptoms *** pots. I ended up having a neg result, but you never know. From what I understand, there is also a type of pots that had something to do with adrenaline also.

Hi, new to forum and new to the whole dysautonomia situation. I have known that something wasn't quite right since the birth if my son a year ago. I used to be a very active, outgoing woman. As I'm sure you all know, that is not the case now. So far, all I am sure of, is that I can no longer even so much add stand without feeling like I could pass out at any second. I have not been through any "formal" testing for dysautonomia, but after almost weekly trips to er for what I feared was a major heart problem, an amazing neurologist examined me and concluded that my autonomic nervous system was failing. I now require a "babysitter" for myself and my children, for I am terified of being alone with them, my 7 year old has seen mommy fall down unconscious one time too many. through ll this, my husband has tried to be supportive, although he seems to think that I am just tired, and that maybe I just need some rest. He is in the military, and gone about 2 weeks a month. What can I do or say to help him understand? I have this feeling that he sees me as a weak and uncapable wife, something that I have never been during our 10 years of marriage. I am fearful of becoming depressed, any thoughts???