Susanhs

Hello livingwithpots! I too am a newbie here and have found everyone to be very helpful. I have the same issues with swallowing. I constantly choke on virtually nothing and I know how very scary it is. I've been home alone and it has happened a few times and thought I was gonna die. I don't go out much to eat mostly because I can't eat "real" food, but when we have went out, I usually choke on my water or just talking to my husband. It is really embarrassing. I have had a barium swallow which I had difficulty with the swallowing, but the doctor did not really look at that issue, he was looking into why I was vomiting up food several hours after eating. of course, the test only showed mild reflux. I also had an endoscopy. I told my gastro about the choking.and he dilated my esophagus hoping that would help the episodes. Unfortunately, a few days after I still was choking on my breath even. I do have bulging veins sometimes on my hands, but I have no idea what that is. I've never gotten around to asking about that. So many mysteries with Dysautonomia Please let us know what the results are. I hope you get some answers to your troubles.

I was just finally diagnosed too, with POTS with orthostatic hypotension. My doctor said to drink at least 64 oz of water (2 liters?) but didn't specify how much salt. I haven't been able to drink near that much because I have digestive problems too. She also suggested compression stockings over the waist and that seems to be helping some days. So you may want to try those. I was having even more intense problems during my period and went on a continuous birth control pill, Loestrin 21. I figured my issues are bad enough without my period so why not at least take the additional worsening away. Best wishes to you.