Hoshistorm

Thank you soo much for all your comments everyone! I think I am going to try using the resistance bands to start out. I do not feel sfe doing any of the others right now. Thank you all for your input and encouragement. I hope you all continue to improve!

2 Times for POTS. Passed out 5 times. The ER doc. thought I was crazy when I told her that I have dysautonomia-POTS.

The appointments yesterday went well. First off, I had the appointment with the cardiologist. He said that yes I do have Dysautonomia. I actually have a rarer form called POTS. So, instead of making me go through more agonizing days, he started me back up on the Metorperal. He did schedule a Tilt Table Test for next Friday. He said this was just to make sure that the meds are working. If they are not, he will increase them or start me on another medication. I can't wait for them to kick in. He also has me wearing a heart monitor for 48 hours (until Friday at 11:30). This way he can confirm that my heart rate is going faster than it should be.

I was wondering..How much do meds really help with the symptoms? Will I always have trouble with exhaustion after appontments and visits? Will the lightheaded spells go away? Will I ever feel symptom free?

Thank you! I don't own one, but I think I will have to give it a try.

I am just curious about whether or not most of us exercise.

Currently I am not able to exercise. I cannot stand very long and my heart races when I try to. Also I fainted this past week and chipped and fractured my wrist. I am not sure what I can do while sitting with only one arm available.

All the time

What other things make symptoms worse for you, if you don't mind me asking?

Yesterday my Dad, Grandma, and Brother came to visit me. We had supper and then visited for a couple hours. Today I feel exhausted! Is it normal to feel exhausted after excitement like that? I never experienced that before the dysautonomia.

I was put on 50mg last Friday. However, yesterday they took me off of it in preperation for my TTT. It was helping though. The doc. is going to increase it to 100mg when I go back on it.

Hello, my name is Chiara (Key-are-a). My doctor has said that she is sure I have dysautonomia. I have been having all of the symptoms. Last week Sat. I fainted twice and wound up in the ER. This week Monday, I fainted and chipped my right wrist bone. I am very annoyed. I have been feeling bad for quite some time. Many different doctors over the years have either said nothings was wrong, or that it was all in my head. I am relieved to finally have an answer, but I am nervous. A lot of the time my vitals do not show what is really going wrong. Next wed. I see the cardiologist for my Tilt Table Test. I am afraid that what has been happening will not show up with the test. What can I expect, also, what do they do if your TTT comes back negative?