kjmom

Welcome! Sorry your here though.

I have GI and fatigue issues to, and I'm 10. Was diagnosed like 9 or 10 months ago. Hopefully you'll find lots of answers and advice here! Good luck with the florinef, (I tried it to) and I hope your daughter gets better soon!

-Kayla

Good for you! Glad you had an ok time!

Kayla

Great! That's a good idea. Hope you had fun at the fair!

Kayla

Woo hoo! That's great. I'm kind've on that path to with new meds. I guess just stay positive and everything'll be ok. I always think about how I've changed in a good way with POTS. Like I was terrified of needles and doctors, and now it's just as natural as breathing! Hope you keep feeling better!

Kayla

Well, think about how you would feel without one and with one. I went to disneyworld with a wheelchair, at first I was super embarrassed, but then as time went on, I didn't care how people looked at me. But my opinion is that you should probably get one, at least for reassurance. If you need it, it's there, if you don't need it, you don't. It just depends on how you feel. Good luck and have fun!

Kayla

That good! Hope you keep feeling more like your old self!

Kayla

I'm so sorry you're feeling worse. We've all had those days. And don't worry. Just think, "Things can only get better." Don't give in to POTS. You've fought it for this long. So keep going.

Feel better!

Kayla

Everybody has a time where they feel worse/better in the day. For me, it's before lunch (starts at like 10:30 and ends when I eat and take my meds) but maybe the cycle will change soon.

Kayla

Definitely! Just going out for a few minutes makes me tired!

I also love the seires I am Number 4, I am only on the first book, but it's awesome! (The second is called the power of six) Has action, twists, and a bit of romance so far, but it's not like the whole book.

P.S All the books everyone suggested are good and some of them sound cool!

Kayla

That's good! Little bit by little bit and you'll be sleeping regularly soon!

Kayla

Wow! That must be hard. Hang in there!

Kayla

Did you sleep good last night? I hope all of our tips helped! Insomnia is NOT fun, so I hope you get back to a normal sleeping pattern soon!

Kayla

P.S I just remembered some tips from the Internet that I looked up when I had trouble sleeping...

-This is a weird one...try to stay awake while your closing your eyes and trying to sleep. I tried it once...it helped a bit...

-Try not to think about not being able to fall asleep. If you concentrate on really really trying to sleep, then you'll feel more awake. (I know, the body can be mean to you )

-(I usually don't take naps so I don't know if this works...) No naps during the day. My doc told me that affects your sleep at night.

Good luck on falling asleep tonight!

Kayla

Huh. That stinks. I used to have a lot of trouble sleeping and then I took melatonin...that helped. Maybe you could try different sleeping pills? The drug store always has some variety. You could also try no caffeine for a day like coffee/chocolate? Also set up a routine...maybe reading, listening to quiet music, no electronics etc. I'm so sorry about the nausea and stomach pain waking you up. That's the worst feeling to have at night . I hope you get some sleep soon!

Kayla

I'm so sorry you've been feeling worse lately . On TV, a person said, (I like this quote, I use it as motivation) "At our lowest point, we also are most open to the biggest change." I really hope that doctor has answers. Good luck and I hope you feel better!

Kayla

How are you today? Did it pass? I hope it did. A night of sleep and a new day can do many things!

Again, I hope it passed and your ok!

Kayla

I'm so sorry I could reply sooner:(. That stinks. Maybe it's just a short flare? I'm not sure. I've had POTS since December, so I know what you mean. Always be prepared for something new in your POTS part of life. And don't have a pity party all by your self! Let's all join in guys! Let's pity ourselves tonight! I'll bring virtual cake. Ice cream anyone?

Kayla

P.S Teachr4k-I also have a boyfriend and even though he doesn't have POTS, he's been so supportive and sweet. He almost makes me feel a bit better . I hope you, your daughter and family are doing well also!

Christyd-I can totally relate to that! It's so hard to get out if the house with POTS. Congrats to you and your son!

Kayla

Keep up the good work!

Awesome poll summer! I have constant stomach pain, (for 7 months now) and if that goes away, so does my anxiety, and maybe even my brain fog. I sure wish this poll were real....oh well. Thanks for the poll though!

Kayla

With my family, I got back yesterday from a 6 hour car ride. I had zofran in me and a little patch behind my ear. (it submits medicine in to the blood stream so you can sleep in the car) Worked like a charm! Happy 70th annoversery and congrats on going parasailing! Jeez. That sounds exausting. Have a good day!

Kayla

Hello Sheila!

Welcome to the forum! I have had almost constant stomach pain for 7 months now. I can totally relate to all that. (it stinks though having it all the time:()I can also relate to the losing of weight. I lost like 9/10 lbs. For eating, I suggest light foods first, like, crackers/soup, then start taking small steps in eating. The thing I suggest for nausea is zofran. It has saved me at least 5 times! Also sea bands, acupressure cuffs that go in between your two tendons. You can find me at the drug store or whatever. The good thing is people on this forum will support, advise, joke and comfort you all the way. I hope you will find a cure soon! Don't give up!

Kayla

P.S "My body tells me no, but I won't quit, cause I want more!" (love that song!)

Hey! Welcome to the potsies group! So sorry you went through all that:(. I'm 10 and can't imagine having chest surgery! Everyone on here has different symptoms, stories, doctors and things they have to do in regular life. But we all help each other along the way with our, (what I call it) "POTS part of life" so I hope we can help you!

Best wishes,

Kayla

P.S I totally know what you mean with the heat and heartrate stuff. I was super scared when the doctor took my HR standing up and it was 170! And I don't like heat as well. Feels really bad! And as KimbelGirl said, congrats on getting in to medical school! That must be awesome!

Maybe just stick to light foods, like pasta, crackers, soup, whatever is light on your stomach. Small steps...

Kayla