martiz

Basically, I do best on a limited paleo type diet.

Meat: chicken breast - grilled or boiled. beef liver - grilled

Carbs: potatos, little bit of GF Bisquick with jam

Veggies: carrots, tomato, cabbage, onions, broccoli

Fats: less than 10gms per day due to pancreatitis

I try to not eat any processed foods, no gluten, casein, sugar, MSG. I am trying to get off caffeine but it's not working.

If I am in a flare (which I am now), it is constant. Terrible thermoregulation, bedridden, even talking or listening sets it off (I think because I am concentrating).

If I am not in an active flare, then it fluctuates a little and depends on what I am doing (or rather, my body position), the ambient temperature, etc.

I am north of Houston. What about Dr. Aziz Shabani? I had autonomic testing through him and he works with my endocrinologist. Unfortunately, we're stuck and I need a neurologist to help tie it all together (or cardiologist).

http://www.nerveandmuscle.org/index.php?option=com_content&view=article&id=23&Itemid=38

Marti