Radha

do any of you have your own oxygen tank and use it for the rapid heartbeat or the brain fog? i find that using it at 6 liters helps to slow my heart down when it races and helps when i feel faint or very foggy, not everytime, but better than nothing! do any of you why this would help? too little blood going to brain? so too little oxygen? thanks

radha

i also have hyperpigmention and adrenal insufficiency and POTS, wanted to know how those of you with AI treat your adrenal problems, do any of you take meds or natural therapies? i take seriphos, and cortef, but still feel terrible, and yes i have also lost alot of hair, thanks

radha

thanks for taking the time to reply,

radha

do any of you wake up with a headache? and if you do how do help it to go away and do you know why we wake up with it? thanks for any input, i think this is a great forum and i'm so glad that i'm a part of it,

Radha

sorry to hear you are having a such a rough time, i'm bedridden and have the brain fog very bad and the flu feeling, i can relate to the unpredictable aspect, i never know whats going to hit me next and how bad it will be, everything changes suddenly, wish i had an answer for you, just know that you are not alone and there is support here,

Radha-27 female

have any of tried benicar or losaartan? i want to switch to one of these, i take toprol and digoxin now, but i still get heart pounding in head, and pulse rising even with small movements, thanks for any help,

radha

when i first wake up, many times, my heart is racing and it takes a while to calm down, as if someone suddenly shook me to wake up, does this happen to any of you and anything we can do to help it?

thanks so much for all your replies, i will definately consider taking adderrall, just start out slow i guess, on a very low dose, how often can i increase? and of course trying to get a rx from my doc will take forever, but will try, thanks again

radha

i already take toprol and digoxin, could still take propranolol when i need to calm down? or should i try the adderrall? would that interact with the heart meds? thanks,

radha

hi, first i want to thank all of you for taking the time to answer my questions, i'm so grateful for all the help, i know i mentioned the nervous energy i have inside, even though i'm so exhausted, i cant stop moving, this is worse at night, like after 10p.m. and it keeps me from sleeping, then i'm so burned out in the morning, is there any medication to help this hyper feeling? does adderrall help for this? i heard its addicting. and i dont want anything to stimulate me even more!!

i know this doesnt directly relate to POTS, but i've had very bad sinus congestion for long time, tried all the nasal sprays and meds, doctors dont think its allergy related, but i cant sleep coz so stuffed up and if blow too hard, heart starting kicking up, just wondering if this somehow related to autonomic system and if theres anything that might help, anything i spray, even saline goes up and clogs nose more, totally fed up!! thanks,

radha

my ears are so hyper sensitive and i cannot tolerate any loud noises, even everyday noises hurt my ears, it makes life very very hard, but thank God my parents, whom i live with are very understanding, but i hate this and even the thought of noise makes me nervous and anxious, anyone else experience this? its very bad, thanks

radha

yes i have POTS and very low blood pressure and different viral and bacterial infections and just too weak, and have been sick for very long time, but getting worse recently.....thanks for all your replies i really appreciate the help, so i guess i wont bother with stockings. i'm 27 female by the way,

would stockings help even if you are bedridden and cant even stand? thanks

i cant thank all of you enough for taking the time to reply, knowing i'm not alone helps........

do any of you get so hyper at times that u just cant sit still, have to move some body part? i cant walk, but sometimes i get stop shaking my foot, or feel like jumping up and down, is this because of a raise in adrenaline? or maybe a thyroid problem?? any thing to relieve that? i hate it wheh i get like that, cant stop talking, just want to calm down!! thanks for all your replies, i'm so glad i joined this group!

can anyone recommend what the best compression stocking are, and where to order them? i dont really want anything that is too uncomfortable, and i'm also looking for something for the abdomen too.....to help keep all the blood from pooling after eating, thanks

Radha

my local doc doesnt know much about POTS and i cannot travel at all, so i dont know what to do, anyway, there isnt any miracle cure out there anyway...........

radha

do any of you know of a doctor who will help over the phone? i cannot travel at all, totally bedridden and am searching for a doc who knows about POTS who will treat me, i know its close to impossible, still wondered if any of you know of someone, thanks

Radha

my heart starts beating so fast after i eat, even very small meals, sometimes when i'm too full, it beats very hard in my head, and its so painful, and then i use oxygen to help slow it down, which helps only sometimes, i already take toprol and digoxin, but still get these episodes daily, i have lost lot of weight because i eat so little, i'm so worried, and dont know what to do, have any of you experienced this and what helps, except of course not eating!! thanks

Radha, i'm 27 female,