Radha

thanks so much for your replies, i have noticed that when i just stop forcing it and wait then i can usually swalllow ok, it just takes alot of patience i guess! too bad there isnt a pill to help this, thanks again

Radha

i have been getting the internal quivering and trembling for a long time now and its getting worse and with that i feel like my whole

body is spasming, like its trying so hard to fold up, the upper body is bent over with legs pulled up into chest as far as i can bend

my legs and whole abdomen is so so tense and cramping, and i feel this way so hyper and tense for about an hour to 2 hours twice

a day at the same times everyday, its terrible and i dont want to take things like xanax everyday, but this whole episode leaves my

whole body aching and so so drained, any ideas what might help? and would adrenaline do all this? thanks for any help

Radha

i was lucky that a friend of my dad's is an eye doctor and came to look at my eyes and he thinks i have optic neuritis, do any of

you have this or had this? what is scarey is that it is a sign of MS, but i dont think i have any other symptoms of MS, but i do have

Lyme and i know lyme can cause the optic neuritis too, for those of you who have had this, what medicine did you take or did it go

away by itself, mine seems to be getting more and more worse, and i am so worried it will never get better! i have ordered

different eye drops, one abx, and one anti inflammatory, do you think these type of drops will help this problem? and how long did

it take for vision to get better or normal again? what symptoms did you have? thanks so much for any help

Radha

mayo may be a great place to get a diagnosis, but did they change your treatment so that you actually felt better and saw improvement in any way? did they prescribe any medicine that your local doctor hadnt given you?

Radha

i had problems with swallowing for a long time, but recently i noticed it is geting worse, sometimes have to try 3 or 4 times just to

swallow my saliva, and then other times, swallow no problem, could this be just the POTS? and is there any medicine or pill to help

it? thanks for any help

Radha

from what i have been researching, my problems dont fit the description of glaucoma, macular degeneration or cataracts, so it

doesnt look like i am in real danger, still these symptoms are bothering me alot and interfere with what i want to do like read or

watch t.v., thanks so much for all your replies and concern, if there is any med or drops you can think of that might help, please let

me know, thanks again

Radha

i also have chronic late stage lyme disease that i cannot treat because i cannot handle the effects of any antibiotics, my doctor

comes to my home, he is a friend of my dad's but he only comes if absolutely necessary, yes i have a wheelchair but cannot sit up

long enough to travel, eyes are constantly changing, sometimes better than other times so i dont think a new prescription for

glasses would help, but it is very frutstrating not being able to see clearly and not knowing how to make it better, thanks again for

all your replies, if you know of any eye drops or other medicine for possible glaucoma that i could try, please let me know,

Radha

thanks for all your replies, unfortunately i cannot get any eye doctor to come to my home even if pay them cash, the vision gets

alittle better sometimes with ice, and rest, and sometimes after i eat something, yes i am very worried but dont know what to do

since there is no way i can leave my home, could POTS be a reason for all this? i think i am too young for cataracts or glaucoma, i

am only 33, thanks again for all your replies,

Radha

my vision is getting even worse than what it was before and i am very worried, i am bedridden and cannot leave home to see an

eye doctor, my vision is geting more blurry, sometimes it feels like there is not enough light in the room, like vision is getting

PP

darker, and other times there are spots, could all this be because of POTS asnd EDS? i have always worn glasses but my blurry

vision is not the same all the time, sometimes extra bad and other times not very bad, please, any input or advice would be

appreciated, is there any eye drops or medicine i could take to improve any of these symptoms? any help would be so appreciated,

thanks

Radha

thanks for your replies, i dont think i am going to try it,

Radha

have any of you tried savella for pain? my doctor has suggested i try this but i really dont want to take any anti depressants and it

has alot of side effects like insomnia, any input would be appreciated thanks,

Radha

thanks for replying

Radha

when i stopped digoxin because doctor didnt think i needed it, i have been getting very often first thing in the morning where blood

pressure is very low around 82/47 and then pulse is same or higher than 82, then later it gets better, but now on my own, i started

the digoxin again and bp and pulse are little different, not same anymore and bp has even gone up to 90! does anyone know why

digoxin would help when i dont have arythymias and what this problem is called, when bp and pulse are same or pulse is higher?

and how do i explain this to my doctor?

thanks

Radha

is thre any med or treatment to fix this vagus nerve problem?

Radha

i eat so little and still all the symptoms come and so severe, so i only put myself thru the hours of suffering twice a day and each

time its a nightmare so i am always so hungry and eat so so little! metformin seems to be helping sweating just alittle, and i dont

get sweat if i eat absolutely no carbs, but so little carbs trigger it, but even with protein still get the adrenaline rush, headaches,

pooling so bad.......

Radha

bjt and earth mother, thanks so so much for your help, that article sounds exactly like me!! i wish it mentioned a medicine to help

it! right now i am trying metformin and i notice less sweating so i wonder what that means, i never have high blood sugar,

sometimes low, so i know i dont have diabetes, but still the diabetes medicine is helping, so i wish i knew what that meant! thanks

again for telling me about the aloe juice, i will try that too,

Radha

can you tell me where you got the aloe vera juice? how did it help the post prandial symptoms, did you feel calmer? i am on a low carb, sugar free, fat free, caffeine free diet, there is nothing more i can change!! no wheat either!

thanks for your help

Radha

i have a number of problems when i eat and i used to sweat very very badly once in a while, but now its happening every day, with

the same food i have eaten for years, do any of you have any idea why i would be sweating and why its getting worse? i always get

very very hyper and shaky, i thought about sugar problems, but i am not eating anything different or more food either, any ideas

would be appreciated, thanks

Radha

hi, i am know all about eating difficulties, i have every problem you can imagine when i eat, choking and hard to swallow, stomach

cramps, get so hyper all over, cold, sweat, terrible headaches, painful blood pooling in stomach, hands and feet, heart racing, its

more than a nightmare and i am always so hungry because i can only eat so little, so i understand your frustration, i know if i think

about the past when i was healthy or think about the future and how much worse i might get its just too too depressing, so try your

best to stay in the present and try to distract yourself with t.v. or a book or the internet, hang in there,

Radha

thanks so much for your explanation, it sounds like the blood test is not going to help me since i dont know when the right time is, if

i am having a hashi episode or not and i cannot keep getting blood drawn, not that my doc would agree anyway! maybe i wlll just try the

armour if my doc agrees and see if it helps, thanks again,

radha

do the test results for hashimotos change day to day then how do i know when to get blood drawn for most accurate results? if you

are not sure you have it and dont treat it does it keep getting worse? and is armour the same treatment for it? thanks for all your

replies.

Radha

how did you get your doctor to give you octreotide? did you have to do alot of convincing?

Radha

what doesnt make sense to me is that my symptoms go with hyperthyroidism, not hypo, but my TSH is not low like it should be for hyper, can anyone

explain this? thanks again for all your help

radha

i am sorry to hear you are fainting, i have come close but never actually totally lost consciousness, i really hope you feel better and do not faint anymore, that has to be scary!! take care

Radha

thanks for all your replies, my T-3 is 2.6 and T-4 is .91, does that make any difference? i am thinking of just buying armour online without a prescription to see if it helps, i know that is not best but my doctor is very strict about normal values.

Radha