hayley

im not sure how it works but i think its to do with pressure points in your body and the man just gently touches them.It works on people with anything including ms.If you do a google search on bowen tchnique you can read all about it.sorry i dont know how to do the links.And it also is suppose to open up the pathways so that the messages can get through easier. Its takes about three sessions to notice any effect.hope this helps.

they found out my bp goes low at night through a blood pressure monitor and is high through the day.the medication they usually use for pots i think is to higher bp.im not really sure.i tried beta blockers but they made me worse so i think im better off without meds.

hx

hi,

I just wondered if anyone suffered from PMT.Just before my period i get down and angry.Im taking vitamin b5 and magnesium which has helped abit and i wondered what other people take for it.

thanks.

h x

hey everyone.

i just wanted to update you with some good news.

i went to see the specialist on tuesday and he said that he cant treat me with medication because my blood pressure is abit high,but then goes low through the night.So ive got to carry on as i am with exercising and drinking and looking after myself.

ive been having alternative therapy.Its called the bowen technique.It helps balance out your body and it has helped so much,i am soo much better.

The specialist said that i can go back to work part-time but it would be better if i had a desk job. Im thinking about doing volunteer work for a couple of hours a week.

I know i will have bad days and good days and ive got to try not to overdo it.

but i am happy that i can finally start getting on with things.i think i am one of the lucky ones but it hasnt been easy.So there is hope for other people and dont give up.

take care.

h x

hi,

im 20 and have stretch marks, lots of them.I think mine are caused by my ehlers danlos syndrome though.

take care.

h x

welcome.

i have neck pain and my neck swells up which makes me feel ill and dizzy.

i havent yet found a cause for it yet but i am going back to my specialist for my EDS III to see if he can find out why.

hope you find some answers.

take care

hx

yeah im cool.thanks for caring.i was there on tuesday,two days before it happened.now im abit scared of going back.

i was in london on tuesday two days before it happened on the exact station where people were killed.its so scary.i feel so sad for all those people.

h x

does anyone have high blood pressure with pots and only goes low through the night.

h x

hey persephone,

My symptoms are like a yoyo.I can be lying down and my heart will beat fast and i feel dizzy 10 minutes later it will go, and it happens like that all through the day.whether im lying or standing it doesnt matter.Im alright between the episodes just abit tired.But i never have a day without my episodes.Maybe i am just strange because pots people seem to get symptoms all day.

Alot of people dont understand pots.

h x

hey.I sometimes pass out when lying down.I also get alot of dizzyness when lying down.I also have the heaviness and struggle to walk properly afterwards.Ive no idea what causes this sorry.I had it for a long time.

take care.

hope you find some answers.

h x

hi, im also from the uk.which part are you from.I just wondered have you seen any specialists for your symptoms.

take care.

h x

i spoke to persphone the other day and she is at st andrews graduating.

take care

h x

hi,i just thought i would reply to you.I get palpations when my neck is touch and its very uncomfortable.Im sorry i cant really help you with you problem but i hope you find some answers.

take care.

hx

What about making cards,like birthday cards or thankyou cards.Its really easy.Ive been doing it since ive been ill.You can stick ribbons and different papers on to it.So you wouldnt have to draw and you can be a s creative as you like.

hx

thankyou for replying.I have tried the birth control pill but it made me really irritable so i came off it.I was interested to read about the saliva test.Where can it be done?

Thanks again.

h x

hi everyone hope you are doing ok.

I know we have discussed this topic before but i have a question to ask.

I was doing so well up until now.I fainted this morning and my period has just started.I always seem to faint when im on my period.im also sooo exhausted.I just dont want to be fainting every month when my period comes.

Please could you give me any ideas on what would help with this.

thankyou.

h x

thinking of you and your family.

take care.

h x

welcome,i am also from the uk.I am under prof mathias aswell and havent been treated with medications.I have pots and eds for about 2 years and i havent been able to work for 16 months.i no how frustrating it can be not being able to do anything.Its my 21st birthday in july and i would have love to go out with some friends but i dont think thats going to happen.I am so desperate to get a normal life back.But for now ive accepted that this is it for me and to carry on the best i can.Stay positive.I have treid the compression hose and found it helpful.I also tried physiotherapy to strenthen my leg muscles, which has help alot.But i still have pots symptoms everyday and faint about once a week.But hopefully things will get better.Take care.

h x

sorry if ive been in the wrong. You do a great job. Thankyou.

h x

im so happy for you.take care.

h x

Good luck.

H x

Thanks. thats exactly what i have.

Hi

i was just wondering if anyone had 'episodes' where they get tachycardia and dizzy and feel like they are going to faint.It lasts about 15 minutes then im fine just abit tired.And it goes on like that all through the day.It doesnt matter whether im standing up or laying down.Is this what POTS is.Sorry nobodys really explained it to me i've had to learn myself, probably like so many others.I hope i dont sound stupid.h x

guvna 2004,

I thought i would reply to you .I think its a way of controlling the stress in your life. have you tried councelling.There are some good ones out there.Take care.

h x

just wondered if anyone has itching all over after alittle bit of alcohol.if anyone does do you know why it happens.

h x