lloppyllama

I am on beta blockers and melatonin, so that is interesting that beta blockers get rid of the natural melatonin, it makes a huge difference for my sleep. I am not going to worry about it...I will ask my doc, but as long as they thinks its ok, I will too. Thanks for sharing though, good to know!

I used a thing called thermotabs, they are just salt. But they are very hard on the stomach and I couldnt tolerate them....here is the link to the post I asked about salt pills...

http://dinet.ipbhost.com/index.php?showtop...lls+lloppyllama

Good Luck!

yeah I got mine the other day too, its wasnt bad at all, I think it made me have cold symtoms for a few days though, because I was fine and then like 2 hours after the shot I was sneezing and coughing like crazy! It was odd....but it was worth it, beats getting the real flu!

I am wondering how many people here have IBS or other related issues. I am struggling with that type of thing right now.

Thanks,

Mary

I get shivers and my teeth chatter, but I actually have never figured out why, its usually when I feel really sick though and am out with people. Like when I think I might throw up I do it.

I am so sorry to hear about what happened. Just trust that what is meant to happen will, and even though you care deeply for this guy, if this relationship is truly to be ended, then that only means that God (or whatever you believe in i.e fate etc) has bigger and better things planned for your future. Just remember it will work out eventually.

Now I am only 16 and have had pots since I was 13, so I am not that old into the dating bis but, I do know a few things. Right now I do have a wonderful boyfriend. I will say that I didn't go looking, I just kinda figured that I wasnt going to find someone who really accepted me while I was in High school, but I guess someone had other plans for my life, anyways basically what my advice to you would be, accept your life as a single person right now, and try to embrace it, its generally when you arent searching for someone when they will find you. Just trust and be patient and things will work out in due time.

Feel better, and remember its ok to cry!

Mary

Thank you all for you help, I am hoping to get put on something for my brain fog, as this school year it has been much much worse...its insane I have never felt this "foggy". Thanks again for the help!!!

Mary

Just wondering if any of you are on medication for brain fog? If so which ones? And does or do they work?

Thanks,

Mary

I do about 30 minutes everyday, or almost everyday, so maybe you could start with something bit less than an hour, and work up to it. I hope it goes well for you, best of luck!

Since it is happening to both of them, it makes me think that either they could have genetically transfered POTS, or they just both have low BP. It is relatively normal for people to see spots or black out when standing up too fast if they aren't getting enough salt and have low BP.

I would recommend to do the BP and HR check on both when lying down and standing to see what happens, to see if there are other things that would make you think POTS.

Best of luck,

Mary

Midodrine has helped to improve my migraines, and fatigue, but more than that my BB helped. I use Metoprolol, I don't know if you have a BB or not. That is what makes the biggest difference for me, but everyone is different. Mid. still helps a lot though, so it might be worth trying, however it is rather spendy!

Best of luck!

Mary

I live near Rochester, but that is still a bit far from you.

I ended up using thermotabs they are like around 6 dollars, and I just asked my target pharmacist to order them. They were there the next day!

http://dinet.ipbhost.com/index.php?showtop...p;hl=salt+pills

I had just recently asked this question, here is what I got.

I too will have more severe symptoms during my period, I go to Mayo as well and know what you mean of how they act about it. I know that I cant go on the pill because I have migraines with an aura, so that isn't an option for me. I generally find that by drinking a TON, along with really pushing myself to do things, whether or not they are very "big" it is important that I am always doing something and pushing my body in one way or another. Other than that I really don't have much help for you, sorry hang in there, hopefully the others will have more advise for you!

Hey Ana,

Go away? Well yes I think they can, once you get better, by exercising, and just time. As for now, I would suggest compression stockings, along with a vasoconstrictor such as Midodrine...also just keep uping your liquids and salt intake!!!

Good luck!

Mary

I am going to send you a PM, I just thought I would tell you here in case you didnt check there!

Mary

I am quite deficient but my doctor only has me on 800IU a day, and it is still low, but he doesn't want to up the dose, and doesn't seem too worried...so I dont have much help for you there...but I just use the good old multivitamins for my treatment.

I was anemic, and would be if not treating it as I am now...and I do think that my doctor said something about how that isn't uncommon with people with POTS.

You have been through quite the long struggle it seems like. I am glad you have found us here, I hope that you find help and comfort in this group.

Your symptoms do sound like they are POTS for the most part to me. But like your doctor said, everyone is different, and that is very true, though everyone here understands each other in many ways, every case of this illness is different and unique to each particular person, so we aren't going to be have the same symptoms necessarily, even though we do have the same illness.

I am pretty tired and need to get to bed, so sorry for not posting more-with perhaps more support and help, but I will try and chat with you soon, I am going on vacation with my family tomorrow and get back Sunday night, so hopefully I can talk with you once I get back, I look forward to getting to know you better!

I hope you are feeling well, or at least well in spirit!

God bless,

Mary

Rachel, does your sister have POTS as well?

I got that really bad one day when I didnt wear my compression stockings. So for me it happened when I didnt get enough blood to my brain. I dont know if you wear compression stockings, but if you do have you been wearing them? Otherwise I would just try more liquids and salt, or even think about getting stocking to wear. I would suggest Ameswalker...that is where I get mine.

Good luck, hope you feel better soon!

Mary

I believe that generally hyperventilating is when someone is panicking, and so they are scared and start "panting" and then get lightheaded and feel like they dont have enough air. So I am guessing that this isnt what your son was experiencing, unless he was getting really worried about feeling sick and being away from home. I will have trouble breathing sometimes, as will many other people here, including when I am exercising, I do believe that it is just something that happens to people with POTS for various reasons.

Best of luck to you both,

Mary

This is a defenition I found:

Definition

Hyperventilation is rapid or deep breathing, usually caused by anxiety or panic. This overbreathing, as it is sometimes called, may actually leave you feeling breathless.

When you breathe, you inhale oxygen and exhale carbon dioxide. Excessive breathing may lead to low levels of carbon dioxide in your blood, which causes many of the symptoms that you may feel if you hyperventilate.

this is the site where I got that, there is also a lot more info on it: http://www.nlm.nih.gov/medlineplus/ency/article/003071.htm

Sometimes for nausea I try carrots, they actually do help for me anyways...apparently it has something to do with something it closes off in your stomach.

I hope you find something that helps soon!

Mary