lloppyllama

Amy,

I totally know what you mean when you say, "Part of me wants to think I can be rid of this completely, but the thinking part of my brain wants to acknowledge that this feels like for me will be a chronic condition that I need to learn to monitor."

I really want to get better and rid of this illness, but i honestly feel like, for me it may never go away. And i dont know how much i can trust that "vibe" that im getting, because i mean it really could mean nothing, however for years before i got sick, i had this feeling that at some point in my life, i was going to be very sick...haha now dont go thinking im some crazy person all into phsycics and stuff, because i find that kinda out there and all, but still none the less i thought i would get sick, and i did.

So hopefully both of our thoughts are wrong, and we all get better completely!

Have a great day!!

~Mary

You guys can send me a PM too, and I will add you as a friend!

I have wondered about that...but is that still a problem if you are set to private??

Your chances of getting rid of POTS do depend on how you got it, age can also factor into things.

As mightymouse said: "Age may be a factor, but those who have viral onset are more likely to eventually improve or recover as opposed to other types of onset. For some, recovery may take a number of years. For others, recovery is partial. For still others, the condition remains present."

So depending on how you got POTS, your recovery outlook will be different, also everyone is different so you cant be totally sure about how things will work out in the long run.

That does sound like it could be a possibility. There are so many strange things that go along with POTS, it really wouldnt surprise me...

Im going to see my doc on thursday, and i will ask about GERD, and also see if he thinks the strange hick-ups are being caused by the POTS.

Have a good night!

Flop,

Thanks for all the informations, it is very helpful. From what I already knew, and what you told me, it does sound alot like whats going on, but I dont know that it would be causing the random hick-ups, however i supose its a possibility.

Again, thank you!

Thats good to hear that you are now on the track to hopefully getting rid of some of your awful symptoms! Im so happy for you. I hope that its nothing too severe and that it is an easy fix, even if it means surgery, hopefully it would be one that isnt too invasive.

I hope your WI appointment goes well for you!! Good luck, and congrats, I will keep you in my prayers!

I dont know much about this condition, but do know a few things. I think some people here have it, and was wondering if i could get some info about it.

In an earlier post i had said how i was having these crazy hick-ups that wouldnt go away. The ones i am talking about now are different then those, and those have since went away. But the other one im talking about is something i have had for about a year (ever since i got sick....roughly) They are just one random hick-up, and then thats it for a while. When they first started i would only get it like once a day, but now they have slowly been getting more common, and now i am getting them like every 10 minutes. It doesnt sound like a hick-up either, its almost like im gasping for breath kind of a thing. Do any of you get this?

I have also had problems with my food not properly going down, and then for the rest of the day it will keep coming up, and its not the same effect as heart burn, it does have the acid that burns, but its not the same thing.

I'm willing to hear any help or advice any of you have to offer, even if you dont experience this. Thanks!

Thats wonderful! Thank you so much for helping to further educate the medical community on POTS!!!!

That really great Lisa!!! Im very happy for you, its wonderful to be able to get back into the swing of things somewhat. I hope things stay good for you!!!!

Hey Linda

I dont know if you care or if this is really relavent to you, but after my grandfather (who just passed away 2 weeks ago) got diabetes after having pancreatitis. You said the test show no diabetes, but since it caused that for him your sugar problems might still be from that.

Good luck!

Jan,

I dont know if this is what angela meant since i am not her, but the way i took her comment on larger people never get comments about their size, i dont think she was at all inquiring that larger people dont have problems with not losing weight, i think she just meant that society portrays it as mean and hurtful to make a remark to a larger person about their size, but not hurtful to say it to someone who is small.

Again i dont actually know how she meant it at all, but i think she of all people is not going to go and be a hypocrite and say anything to a larger person about their weight struggles.

I think it depends on your age partially. For people like me who get it in their teens, there is a very good chance of recovery by your early twenties. Im not sure about the stats for adults, however if your doctor said that you should make a near full/full recovery the odds are pretty good in your favor that you will.

You said that you have made a tremendous improvement since when you first started on your path to recovery a year and a half ago. Now you have olny used up half of your time, so to speak, so just look at how much progress you have made in the first half, you still have a whole other half to go. And even though you probably wont double your success, since you wont be having as many things to suppliment into your life to make you better since you already have done the common ones, you will still find more things that work for you in helping you feel better.

Good luck! Try to not dwell on what might happen, and just work on now, and getting healthier today and tomorrow, not 2 years from now.

Have a wonderful evening!

haha o dear, hmm i dont have any other tips, but i think that the more you put them on the easier it gets to be handling the material and hose.

I would say that it does. The first time i put my waiste high ones on, it was quite difficult, but i have not gotten "strategies" if you will, on how to get them on easier. Some people actually wear rubber gloves, or put powder on their legs, which also helps with the sweating problems aswell.

Good luck, hope tomorrow goes smoother for you...

I know how you feel to a degree, different situation though. Right now im re-doing my bedroom so that it is easier for me, healthwise, and its been quite a task for me! I do hardly any work and am already in need of rest, its quite daunting. Its like we feel like we should be able to do so much more than we really can, and then we feel like we are waisting time when we have things to do, even though we really need our rest. Its tough always being ill!!

Well good luck with your flat, and hopefully things get organized and your sister is happy with the situation again!

that would be very annoying. I have never had a problem either way, but i have friends who eat so much food and dont weigh more than maybe 100 pounds. That would be really annoying to have to deal with day to day, when you cant control it and its because of a health issue. I guess all i can say is try and not let it get to you, because they really arent trying to be mean i dont think, they just say it without thinking about how it could actually affect you.

Just remember that it really doesnt matter what people think, you know the truth and what really goes on in your body and why you are like this, and just try your hardest not to let it get to you, and i know its much easier said than done, my family is really dumb about accepting that i am actually sick, and its not easy to just let their comments breeze by.

Good luck with everything!

((hugs))

Wow thats wonderful! Thats deffinetly something i have a feeling a great deal of the people here would be interested in, thanks for sharing, and way to go, thats a wonderful thing your doing!

Thanks, I have had an emg in the past, and the doc said i did very well with handleing the pain....it was funny he said that most people by now (it was like the second "poke") have already tried to punch him several times, i just laughed. I have an appointment coming up next week after the x-ray and will ask about it then. thanks for the help!

Do you know if a back x-ray would be able to show that??? Because i am having one on thurdsay to see whats up, but would never compression show up even?

haha whoa that would be creepy!

For a while now i have been having pain down the bicep muscle in both arms. I was just wondering if anyone else had this or knew what it was or was from. My only guess is that its the vein that runs down the arm there, and when my BP is high from my heart pumping to hard from net getting enough blood, it causes pain. Any tips on how to get rid of this?

Thanks,

Mary

Morgan, Do you think that it could be something like RLS, restless leg syndrome? Because if what you explain is like a creepy crawly sensation than that could be a posibilty. I dont know what the heat would be though, but i get weird hot sensations in my left foot that i cant figure out either.

Awesome, thanks for the help, i will look into it and see if its worth persuing!

Melissa, what ditergents in particular are you thinking are good and/or bad?? Juse curious to maximize the life of my stockings, thanks!