LMG

I have had POTS for several months. Prior to that I had migraines (and CFS which was pretty much under control for past 10 yrs) and after taking Zomig (a tryptan) I ended up in the ER and with sudden onset of POTS. I have been in bed for a few months and just now getting up around the house, and to doctors a bit more easily. Blood pressure is ok, heart rate more problematic along with nausea, migraines, fatigue, shakiness, etc.

I have a few questions. First, the migraines are more frequent and worse. Over the counter meds don't help. I am going for an MRI next week. Not sure what that will show but part of the process, I guess. What kind of doctor or clinic should I try to go to for help with the migraines? I am med sensitive as so many of you are. Also, a new emerging pattern is they start at 5 am. I sleep and then as I wake up or turn over, the headache starts and gets worse. Wonder if that is blood flow as I have been in bed all night? I have the bed elevated 5 inches. Maybe that is making it worse?

Have read florinef is not notorious for headaches as side effect and that is what my doctor wants me to take. I have ok blood pressure so wonder if a beta blocker might be better?

Currently taking an SSRI, Klonopin, Potassium and B12 injections along with salt and fluids. I sometimes wonder if the potassium makes the headaches worse but they are kind of random so it is hard to tell.

Any input is welcome as I need to try to get my life back to some degree. Feel like I am getting weaker over time.

Thanks,

Lauren

Abby,

I am new to the forum and have had severe POTS for several months. Started Prozac a few weeks ago and think I feel a little better. I went very slowly and took 6 weeks to get to 10 mg which I have been at for 5 weeks. What SSRI are you taking and how long did it take for you to get to the point where you could take walks etc? I was bedridden and still am a lot but more housebound now and wondering if the SSRI can get me out of this hole.

Anyone else with input please, it is very welcome.

Lauren

I keep waking up at five am with severe migraines and nausea. I have my bed raised about 4 inches- did it a few months ago when I first got sick. Now I am wondering if I should lower it. I don't have hypotension, issues are more with heart rate . Am curious as to what others will post about this too.