mully2014

I've had my condition all of my life but wasn't diagnosed until I was 14. Originally I was diagnosed with neurocardiogenic syncope and my cardiologist believed it would be a simple and easy case to take manage/take care of...unfortunately this was not the truth. There wasn't any triggers to me passing out but gradually my episodes increased in amount and intensity. Many tests were done and all turned out normal besides the HUTT test that showed up confirming my diagnoses. After I passed out while running (I'm a major runner, well at least I was before) I was also diagnosed with exercised induced hypotension. I've tried med after med with NO relief and continued passing out. Start of my freshmen year I was passing out every day and feeling miserable even when I wasn't passing out. SInce I don't always get a warning of when I'm going to faint I've gotten a few concussions. My first concussion was on Sept. 25,2010 after passing out falling and hitting my head at the homecoming dance. Oct.22,2010 I got my second when I fainted and smacked my head against a wall and headboard. Third concussion was on Nov. 17, 2010. My third concussion has caused me many problems. I now have chronic pain in my head (possibly from my condition). I also had lost my memory after my third concussion. I've worked hard to get some of it back but there is still gaps and always will be. When I finally returned to school (about 2months after) I had to be in a wheelchair. During an episode I injured my hand and had to have surgery on it, I still have problems with it so now it is stablized in a cast. I have continued to keep passing out and now recently have been diagnosed with neurocardiogenic syncope coexisting with postural orthostatic tachycardia syndrome. I also got my fourth concussion on Nov. 17,2011. I'm sorry this is so long but I'm hoping to find some people that can relate to what I've gone through/going through! Thanks for taking the time to read this!

I've had my condition my whole life and now that I've been diagnosed for a while I'm able to make connections to some of the things that were happening when I was little. When I was younger my hands and feet would be really cold but wouldn't have discoloring. Now I have major discoloring (definetly NOT cute) this shows up in my feet, legs, thighs and hands. The discoloring will be blueish purple in a wierd pattern. These parts will still feel really cold during pooling which happens often even with thigh high compression stockings.

I have thigh high ones. I don't have a problem getting them on or off. I only wear them in the fall and winter time especially since they can make me feel hot. My stocking have a really nice band so they stay on well but I love when I get to take them off because it feels like I have better circulation then and my legs don't feel itchy.

I've noticed this too! I believe mine may be occuring from one of the meds I'm on. After discussing this with my doctor they switched the dosage and time I was taken it... since this I've noticed an improvement in my symptoms. NOT all of my symptoms of this is gone though. I really hope you start feeling betteer, wish you the best luck on figuring it all out.