IceSkate

Hello, Thanks for the reply! I have spoken to the internist about a referral to a neurologist, but she wants to see me first... I don't know why. It won't be until next Wednesday. I know that I have POTS because of some of the symptoms as well as the tilt table test results. It's so strange that the doctors say no, but will not say why they won't say no. I've never seen a doctor behaive this way. I may have something else, and perhaps POTS is the result of that. The full body numbness could be making my tongue numb. I don't know. None of the doctors do. I'm hoping the neurologist can help. I'm also nervous about having to talk to the internist. I'm bringing the article about POTS... It says right there that 30 or higher is POTS. My blood pressure did not change, but the article, as well as this site, says it does not have to. Hopefully I'll get down to the bottom of this. I'm really not feeling well, but sometimes I'm OK. It really seems like POTS, but perhaps something else on top of POTS. I'll keep everyone posted. Thanks for your support!

Hello everyone, I am new to the forum. I recently had a tilt table test. The official report says my laying heart rate was 50-60 bpm. My standing heart rate was 90-120 bpm (it fluxuated between these numbers). My cardiologist says I do not have POTs. I asked him why he thinks I do not have it even though the numbers went up over 30. He only replies with "I strongly believe you do not have POTS." I sent him this article from Vanderbilt university: http://www.ncbi.nlm.nih.gov/pubmed/16943900 and asked him to please explain why I don't have POTS based on the numbers. He didn't, and only said "I don't think you have POTS." He said to talk to my internist. She said "I agree with the cardiologist" but wouldn't answer my real question about the numbers. Is it possible I do not have POTS based on these numbers? The article says a normal heart rate rises 10-20bpm when standing. Mine was 30-120. I started having horrible fatigue that got so bad last summer I could barely carry the laundry basket up the stairs. I also had to brush my teeth laying in bed! I had horrible abdominal paints, but every test can back normal (no celiac, no ulcers, etc). They found last spring I have hypothryoidism, and my levels are corrected with levothyroxide. I have also experienced severe lightheadedness at times. These all seem to indiciate POTS. I'm open to it not being POTS, but I'm wondering if anyone has any thoughts about my numbers? Is there something I'm missing... they seem to say POTS. P.S. I've also had a weird symptom for the past two months: inability to taste anything, and full-body numbness (not tingling... it's just like my skin has a severe lack of sensation). I haven't heard of these relating to POTS. I could have something different, or I could have POTS and something different, I could have POTS, but I can't have nothing. The first doctor I saw thought it was just anxiety. Thanks