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Annaliese

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Posts posted by Annaliese

  1. I developed POTS during pregnancy. My symptoms were severe for about 6 months. After that they greatly improved. I have flare ups, but generally I have been able to live a normal life without meds most of the time.

    The same thing happened to me. I am one year post onset and I can only look after one of my kids twice a week for about 5 hours. In addition to that all I do is a bit of housework. How does this compare to your recovery timeline? How long was it until you were mostly recovered? Do you mind me asking what meds you take? What symptoms were the worst or you? Mine are the perpetual anxiety and chest pain(OI I am getting used to).

  2. I am just wondering how many of you started to develop autonomic dysfunction after having a child. For me I had never been sick until after the birth of my second child. I was 21 when I gave birth to my daughter and from that point on I started having problems with dizziness and tachycardia among some other disturbing symptoms.

    I have read that woman who develop pots during childbirth or after childbirth their prognosis to get better is not very good :)

    But I am also wondering why woman can develop pots after childbirth what happens to our bodies that we are left with such an awful illness. Especially when your young and healthy before hand and never had any issues during pregnancy?

    I fear that I will be required to take this Effexor for the rest of my life. I don't want to be dependent upon it for that long. But I also know that without it I am doomed. Has anyone who developed pots during or after childbirth been able to go off all their medications and lead a normal life with little or no symptoms? It's been 10 years since the birth of my daughter and 3 times I have gotten off the Effexor only to have to go back on it because my symptoms return and are life altering to the point I cannot function.

    I developed hyperadrenergic POTS in my third trimester. At the time it was thought to be preeclampsia but then after my C section, I had severe anxiety and a standing hr of over 150 (plus high standing BP). About 2 weeks post c section I was hospitalized. I was very I'll for about 6 months but now at the 13 month stage I have been well enough to leave the house. I need help with looking after my children but I am gradually improving. When I first read that quote from Wikipedia I cried for about three hours straight thinking I wouldn't get better. I am new on this site and would love to hear more about others who have gotten POTS through pregnancy as I haven't a clue what my progosis is or how I should be treated. I live in Oz and am too I'll to travel to the US for diagnosis and treatment.

  3. This is great and very comforting, but a small sample and more research needed, obviously. Clearly there are different causes of POTS and it seems like ideally that should be looked at in regards to any question.

    I am interested in the statement "no complication was related to POTS." Didn't read the full article, but wonder how they know, seeing as so much is still unknown.

    I personally find this contradicts my experience. I was sickest ever with POTS during pregnancy and even sicker post-partum. Eventually improved. Would love to understand why I seem to represent the opposite of the typical trend.

    I seem to be opposite to everyone also. Pregnancy caused my POTS and I did have complications (low birth weight baby). It is very frustrating that there is not more information in the literature about this topic.

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