bond.007

Hi Godsgal. Many thanks for your help. I will certainly take your advice and have the checks made.

Hi Lovebug, Thank you for your help. It feels as if a tiny surge in adrenaline causes an extreme reaction in nerve endings.

Once again thank you issie.

Hi

Hi

Many thanks for your reply.

Thank you.

Thanks again.

Hi

Hi

Hi Naomi, Many thanks for your reply.

Hi, My 22 year old son has been unwell for 15 months. His symptoms came on suddenly. He was in several hospitals with numerous symptoms. He had tachycardia, crushing pain in heart area, crushing pain in kidney area, delayed urination, flushing , extremely sensitive nerves, severe sweating, feeling very hot yet having a normal temperature, dilated pupils, breathlessness, sensitivity to cold and heat, body tremors, severe indigestion, bloating and various other symptoms. He was diagnosed with POTS after he went from a supine position to a sitting position while connected to a heart monitor in March 2010. His heart beat went 3 times faster instantly. As he has difficulty travelling by car ,due to nerves in his heart area becoming super sensitive due to micro vibrations on the road and causing crushing heart pain, he has been unable to return to the consultant who diagnosed his condition. We recently found a consultant locally who performed a tilt table test. This was performed with my son wearing support tights. The consultant was aware of this and said they would not influence the result. This showed my son to have very high blood pressure, fast heart rate instantly on any movement. He has equally high readings when lying flat as when tilted to an upright position. Consultant was looking for syncope to occur and was not familiar with results he found. The most comfortable position for rest is to lie with 4 pillows behind his head. He needs to rest three times a day for 2 hours at a time. His whole life is at a stand still. My son also has pooling in his limbs when he showers. He is also super sensitive when the water touches his body. it can cause the crushing heart pain. Top half of his body goes very pale and bottom half goes dark red. He takes salt on his food, wears support stockings, wears ankle weights for some periods daily, eats little and often, drinks lots of water, drinks isotonic drinks, does toning exercises to prevent blood pooling in lower body. He does not take dairy products or tea or coffee. Does anyone have similiar problems with high blood pressure and tachycardia when lying down and also when standing? The consultant who performed the tilt table test said that with POTS symptoms go away when you lie down. I would really appreciate any help. Many thanks for all the wonderful information on this site. It has been of enormous help to us.