Magnesiumgirl

I don't treat it, because it bounces to normal or a little (and I mean a little, like 140/something) high within an hour or two. That could be why I feel okay, now that I think about it. I am average height and weight.

I really don't know much more that...

Hi guys.

My veins close up so fast! They did have me bend over with my hand down once. She got more than she would have otherwise, but still not the whole order. Most of the blood-drawers (sorry, can't figure out how to spell their proper title!) refuse to touch me. The one is always really sweet, but even she qets flusstered. Oh well, at least I have somewhere that they are nice to us.

I've never had them use a plain syringe before. I wonder if that would work, mine are so small they have to use the butterfly.

I drink a Ton (about 10 glasses) of water before going in too... Oh well, it is what it is, right?

Yay! That is so great that they knew about this! I hope you pull or pulled through surgery okay!

Welcome! I hope things go better for you and yours from now on.

I've been at the doctor's office and they've gotten it in the low 70's high 60's, so nothing compared to the other peole on here! I can hit 75 and feel fine, but other times it will give me trouble at 90/something... *sigh* Just another thing I don't understand about us dysautonomics...

Sorry, I don't know why I said waaay lower. That was silly of me.

I don't have this, but it makes sense. If something is going wrong with your body, then it would make sense that you experence fear. And if your anything like me, your periods make everything worse.

I don't have any answers for you, my family and friends are mostly supportive (even though it doesn't always make sense to them...) and I don't have kids. I just wanted to welcome you and wish you luck.

I consider low to be 80/50; however, my blood pressure has droped waaay lower. I used to get scared when I would see the nurses face, but after awhile you learn to laugh it off. After all, I feel fine!

Do you have trouble with getting your blood drawn?

They can never find a vein on me. It can take them 3-9 sticks.

It only gets worse after they finally get the blood:

I was just there today, they only took four vials of blood, and I am so POTSie! I have not been this POTSie in a long time.

I was wondering if this was a POTS or Dysautonomia thing. If anyone else has trouble with blood draws, I would love to hear about it.

I have major edema.

Cograts, Dani!

And also, thanks for posting this. I'm having a rough day and you just gave me so much hope.

I can only imagine how happy you must be!!!!!!!!!!!!!!!

Once again, CONGRATS!!!!!!!!!!!!

I voted too high to too low, but I am the same as Mack's mom. THe nurses always tell me that my blood pressure is a "perfect 110/80 ( or whatever it is)". However, when I take my blood pressure at home it can be any where from 80/50 to 160/120.

This is interesting!

Proud of you!!!!

I think everyone needs to stand up for themselves more often. It is worth it to say "This is making me more stressed out than I need to be, and my health comes first" and yet too often we don't.

I don't have any advice either! I'm so, so sorry you are having such a awful time

To quote ~Naomi~ "Let's hope you will be better one day and can return to this spot and do all the things you want!"

Hi Brye!

Yes, I have finally stopped passing out as frequently as I used too. I am at the point now where I can shower and be out in public by myself !!!!

It just struck me as odd that there are so many of us POTSies when there are so many different types of Dysautonomia. However, what you said about the POTS being a sort of sign that there is something going on with the autonomic system does make sense.

Let me start off by saying that I have POTS. My three most debilating symptoms are: insomnia, fainting, and shortness of breath.

I was just wondering why there seem to be so many POTSies in relation to other forms of Dysautonomia. Just in what I have read it seems like ALMOST everyone has POTS. Even those with other dx as well, have POTS. Am I just not looking hard enough, or are there a lot of POTSies?

To all of you: this is not bad parenting! This is you doing what you have to do for both you and your children.

Same as Sarah4. I don't have any answers for you, but welcome to the forum. Good luck.

Hello!

Welcome, and may things go better for you now

Hello!

I hope you get to feeling better soon!

You seem to have a great attitude about this!

Welcome!

I am so happy you found this place! There is so much to be learned from the post on here.

I hope you and your doctors find the meds that work well for you soon!

Or at least the right combination of things that give you some good days.

I had never heard of these, they are so fun! Thanks for sharing.

Wheelchair race anyone?