Report Ehlers-Danlos & Pots in Dysautonomia Discussion Posted January 9, 2011 Hello, I am new to DINET. I wanted to ask if anyone had cervical fusion because of Ehlers-Danlos to reduce or reverse POTS. I have read some blogs where the cervical fusion cures POTS. Of course, they still have to contend with the Ehlers-Danlos, but my EDS is mild compared to my POTS.I have gone to several doctors to go over my concerns, but they do not understand. I did apply at The Wisconsin Chiari Inst. and The Chiari Inst. of NY. I was denied surgery by both.I do not have any brain herniation, but have read about Chiari 0 and do have reduced CSF flow through the dorsal foramen magnum.I would love to receive responses from anyone who has the same issues or actually had the surgery.Kindest Regards, Elizabeth
Ehlers-Danlos & Pots
in Dysautonomia Discussion
Posted
Hello, I am new to DINET.
I wanted to ask if anyone had cervical fusion because of Ehlers-Danlos to reduce or reverse POTS.
I have read some blogs where the cervical fusion cures POTS.
Of course, they still have to contend with the Ehlers-Danlos, but my EDS is mild compared to my POTS.
I have gone to several doctors to go over my concerns, but they do not understand.
I did apply at The Wisconsin Chiari Inst. and The Chiari Inst. of NY. I was denied surgery by both.
I do not have any brain herniation, but have read about Chiari 0 and do have reduced CSF flow through the dorsal foramen magnum.
I would love to receive responses from anyone who has the same issues or actually had the surgery.
Kindest Regards,
Elizabeth