Kay
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Posts posted by Kay
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Does anyone know where to get some compression stockings that are a little more stylish than the kind you get at a pharmacy? I am willing to pay money for them.
On another note, I put on the ones on I did get today.... and I fell off my bed trying to put them on LOL!!!! Those things are hard to get on... but once I got them on I did feel a little better... the top of my legs kind of hurt though is that normal?
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I haven't really felt anxious.. but the goosebumps and I feel cool... which I get all the time.. I like them though because normally I stay super hot..
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Lately I have been getting horrible Charley Horses (muscle spasms) in my legs at night time and its occuring almost every night. I am going to the doctor on Monday but I Just wanted to see if anyone else is having these issues.
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I always say
"If I pass out, don't give me mouth to mouth, I'll get back up in a minute"
And people always give me this face
Or
They ask me what type of health condition do you have
and I say "I pass out" and they give me this look
It's most funny when I'm driving and they are in the passenger seat LOL
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I had diarrhea for a while with POTS, but then it became constipation ended up going to the GI Doctor and they diagnosed me with Irritable Bowel Syndrome which is also a common complication associated with POTS.
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I took midrodrine, I was diagnosed with high blood pressure but my blood pressure would drop drastically upon standing so they prescribed me the medicine, I had no issues with it except it gave me the chills but it worked for me. My doctor didn't like the medication because it was not FDA approved and had a black box warning. (Not sure what it is) So he took me off of it, I take metoporal right now and I have had no issues.
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When i first got diagnosed I could not drink at all, I could barely stand. After having POTS for almost 3 years now.. I've had a drink and I am okay while I am drinking but the next day I am in the bed all day and my heart rate doesn't go below 100 laying down and everything. I decided that it's best if I just stay away from Alcohol. Every once in a blue moon I will have something like my birthday but I know I am going to end up in bed all day the next day. I know that it's fun to be able to hang out and drink with your friends but sometimes you have to do what's best for you. Good luck!
Cerefolin
in Dysautonomia Discussion
Posted
I take it, I just started and I can now sleep and my mood is 100 times better, i am excited but not getting to excited until I've taken it a month, its been 2 days LOL not really long enough to tell but I've slept so thats improvement for me!!!