Hi all! I'm new to this board and looking for some help. For approx 18 mos been having bizarre symptoms. The one that brought me to the doctors was my high heart rate and swelling in the hands and feet (especially with exercise and heat). I have had all kinds of tests. My doc thought it was a pheo, sent me to endo and she ruled it out. A few months later I saw the show on TLC (Mystery Diagnosis?) and thought the lady sounded just like me except I dont completely pass out. Started researching Dysautonomia and found this site. I was floored! I have every symptom! So I printed it out and showed it to my doc. He read it , kinda shrugged and said something like, "you dont want to have this, its incurable and hard to treat. I dont think u have it." Thats it...no tests nothing! Since then I have had tons of blood work, 2 holter monitors (inappropriate sinus tach), an echo (normal), sleep study(no apnea but found I dont oxygenate my blood when sleeping O2 levels in the 70s), (PFT"S for shortness of breath, Normal) seen 2 cardiologists who were just insulting, and tried to put me back on beta blockers, which I do not tolerate, bad side effects (nobody believes this cause "it's what we always use for sinus tach and high bp"). A few months ago I started having severe fatigue and joint aches so I begged my doc to send me to rheum. He diagnosed me with hypermobility joint syndrome. Having no clue (neither did the doc apparently) that there was a connection to this disorder, I was furious and discouraged. Then my mom called to tell me she thought she knew what was wrong with me...she had seen the show and thought it sounded just like me! So I turned my attention back to this site. That was when I saw the connection to the hypermobility syndrome...once again I was floored. I know I have this disorder! Thank the Lord I'm not just crazy, or lazy, or all the things people have accused me off all this time. I know that all these different symptoms that seem so random are tied together! I have been validated in my own mind even though I cant say I have it cause I have n ot been diagnosed. Now I dont know what to do because I live in a very small town in southern Idaho and no doctors here know what it is! There is no doctor close! I'm trying soooo hard not to get depressed but I cant work(I'm an R.N.) and we are on the verge of bankruptcy due to this and all my medical bills. Your stories and posts are pretty much identical to the symptoms I experiance and I cried when I read them cause it was like reading about my life. If anyone can HELP me I would be so grateful...Im so sad, discouarged and just feel so awful all the time..Feel so alone...nobody understands, or even tries too...