I was diagnosed with dysautonomia on Monday after bouncing back and forth between appointments for a year and a half and being symptomatic for some time before that. My cardiologist said that he'd suspected it back when I saw him in November, but he wanted to order an MRI first to rule out something else, which was why he'd told me to increase my salt intake (it hasn't helped yet) and then I had problems getting his office to book me a new appointment. Anyways, my head was all woozy and I was confused at the appointment, so I didn't ask a lot of questions that I should have. Also I can't really remember a lot of what he said. (This usually happens when I go to the doctor's office, but I'm writing down notes and questions for next time, hopefully I'l remember to look at it.) I've been doing as much Internet research since then as possible, but the doc isn't going to see me again for 2 months. I am seeing my GP this coming week, though, but I don't know if she'll be familiar with it. Right now I'm on Florinef, and the doc said to keep up a high salt diet. I think maybe my increased salt intake wasn't increased quite enough, so I'm trying t bring it up. Question: how much salt do you guys find is necessary to make a difference? And how do you get it? Also, re: Florinef; how long before I can expect to see an improvement if it's working for me? Are B12 shots any good? My mum suggested I ask about them. I've heard about compression stockings, I'm trying to find some locally. Is there anything else non-medical that can help? Any recommended exercises? What kind of questions should I be asking my GP and my cardiologist? These are my symptoms that seem relevant from what I've read: (in no particular order) dizziness/light-headedness fatigue/lack of energy occasional fainting, less-occasional 'falling' headaches cold hands/feet difficulty concentrating, confusion, memory 'glitches' (while standing/walking for long periods) noise/light sensitivity insomnia easily overstimulated/bothered by crowded areas poor reaction to stress Thank you for any help you can give.
