fire_lupine06

Anyone else have any ideas?

i have been on a holter and a 30 day monitor but it just caught the same pvcs and bigeminy that the ER docs seen and my cardio seen and said was benign

Sometimes when I am standing I have many pvcs bigeminy and palps but the odd thing is it happens Alot when I lie down..its really scary at times with how hard it kicks me...any ideas?

thanks for all the help guys, i will try some of your ideas ...basically the pain is like i've swallowed something very big and heavy...say like a bowling ball

Any help here?

Hello All....i seem to be having an issue here..

I get blood pooling in my stomuch...so I eat and that seems to make the pain and bloatedness to go away....only for it to happen again...so as i result i am eating more often then i should... but eating seems to be what makes the pain in my stomach pain to go away .

Should I feel guilty about gaining?

Any idea how i can make the tummy pain stop?

1. Some helps too much puts me on edge and makes me snappy

2. Not really sure how to reply

3. my hands and feet are alil red and splotchy normally...but if i stand alot they go clamy and blue ><

I cant nap due to rapid heartbeats/ pvcs when I lay down.

Sometimes mostly at night , i get headaches and brain fog...and it leads to me being short with people and they dont understand it and think its cause i am sleepy which Is Not the case ....I guess I am just venting here but anyone have any ideas?

I have urinary issues from my pots....i get leaks after going , and sometimes i wont finish going and my body will stop...only to start again with NO warning...fun stuff , this POTS...

Cooking normally destroys that poison

The most worrisome one for me...is the pvcs i get whenever i lay down ><

Thanks for the help.

So can I ask...is it a pretty certain thing that i have POTS?

Thanks...mine had 130 and stayed there for at least ten minutes during my TTT...my hands and feet turned blue ...

Thanks for the help...the issue of generics is that I need a doctor to actually DX me with POTS to get them. The TTT showed my HR jumped points and to confirm pots the min is 30 points correct ?

Thanks again.

I also have hanger pains, headaches, and that too.

Okay...I'm pretty sure I have POTS...as a Tilt Test Confirmed I did...but the Cardiologist overseeing me said it was all due to me losing weight ...Anyhow I suspect one of the reasons I was brushed off was because I dont have insurance or the cash to pay up.

So this being my case , how do I find a doctor that would treat me or do I have to suffer with this condition without meds ?

Just to restate my symptoms :

Pvc's when I lay down

Dizziness when I stand from laying

Blacked out a few times in the last year ( 6 times or so )

Nausea esp after I eat

Hands go blue if I stand still

Blood Pooling in my legs.

Low Energy

Brain Fog

Some Tremors in my arm if I get overly Stimulated

Low tolerance to stimuli.

On the TTT my HR spiked at 130 and stayed around 125...my supine pulse was 65-70, my bp well it didnt drop but at one point it was 110/40 . Any Advice would be big help to me .

I feel for ya...my old doc was an idiot too...tried to say all of this was cause i lost weight...yeah right .

Symptoms:

Visual Snow Sometimes..mainly driving in rain or fog

Starburst (flashes of white light) not really

peripheral whitelight flashes Nope

floaters yes esp if i get upset

afterimages sometimes

difficulty focusing under neon lighting omg yes ...

Worsening of symptoms under neon lighting yep

Any other of a myriad of visual disturbances

Questions:

1. Do you seem to pool or have you been told you pool in your hands and feet, stomach or everywhere? pooling in hands feet, hands and other places.

2. Do you suffer from cold feet and hands similar to raynauds syndrome? yes i do

3. Do nurses have trouble finding a vein when trying to needle you? no, thank god

4. Is anxiety or a hyperadrenergic presentation one of your problems with POTS? Yes i think so

5. are your symptoms worse in the mornings? No

6. Do your symptoms wax and wane or are they constant? wax and wane

7. Was the onset of your POTS abrupt, sudden or mild then sudden? mild then sudden

Would Pots affect bruising tho?

I have the cold blue hands anytime i stand still for too long ...like standing in a line at the store.

I've noticed it only happens late at night for the most part..but i have PVC's and they are most active right before or when i lie down to sleep, so i dont know how that is connected .

Is it odd that when i get really anxious about something my body shakes some and my arm jerks...is that POTS related?

I have PVCs at times

The other evening it was 75 and i had to mow the yard...and i didnt sweat at all...odd huh?