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Jangle, that is great news!! A dream come true. You will be one of the best!! Blessings to you.

Clonidine and Klonopin is the best for me, but start clonidine very slowly. Good luck!!

Hi tpots,

So sorry you have gone through this misery. Yes, I have had this kind of verdigo many times through the years. Having to not turn my head and lay in one position for many hours. Drinking a lot and getting rest, but trying to move enough to keep up some strength helps to keep this vertigo under control. I stay away from the ER, because they would make me sicker. Medication has made me very sick in the past. For me, waiting it out has been the best medicine. Your are not along. I care, Mary

So sorry your are having such a hard time. The reality of this illness is just hard to think about. Being able to walk 6 steps, is exactly where I was at the same age. This is going to get better!! Much love, Mary

Dinet is like being home for Dysautonomia. It still makes me tear when I read the posts, because I know what they are feeling. There is always hope!! You will get lots of help here. So sorry you have been through so much. Hope you find a good doctor soon.

Most of 10 years, but after seeing Dr.Coglan, my life was back to almost normal. There has been backslides.but I work hard and start to feel better again.

I say OK most of the time, but sometimes " ruff ". Keeping it simple always.

I was told many years ago that the TTT must be given in the morning with an empty stomach or the test will not be true. Some of the TTTs are done all day long. Most of us are much sicker in the morning. .Hope you get better soon.

My doctor at the Cleveland clinic told me to lay down directly after exercise for 20 min. and eat a salty snack and drink before and after. Take it slow and gradualiy increase to 30 min. three times a week. Everyday is the best. Maybe you can lay in your car before you get dizzy. I am always dizzy while laying. Good luck!

When I have been on my feet too long, my face has a numb-like feeling. Not very pleasant! Hope you find answers and a way to get better. Boot camp sounds good.

For testing because of extreme weekness.

Made my stomach hurt, but for sum a very good medication. Hope you are one of those!

LOVE HEARING THAT YOU ARE DOING SOOOO GOOD.

When I was sicker, car sickness was awful, but now it rarely happens. I had to travel a long way many times before getting better and I would keep peppermint in my mouth all the time while in the car. Your not alone!

No matter how down you are, never forget that I care so very much. We are a family here. Love, Mary

Great News! Happy for you! Hope you get better and better!

Paxil for blood pressure and Wellbutrin for fatigue. Tried many others, but they made me very nauseous.

Yes I sure do!

My swelling is exactly as dizzyblonde describes and the super itchy, what is that all about?

POTS in 1990 and EDS 2010. My daughter has Hypermobility worse than me, but my dys. is much worse. She has fibro.,that can be disabiling at times.My grandmother could touch her hands to the floor.

The best time for a TTT is early morning and no food after midnight. This was Dr. Coghlan's opinion. The cleveland clinic does them most of the day and said nothing about fasting. Hope everything goes good and wishing you the best.

So sorry you sweet sweet girl! This was a tough time for sure. Walking two miles might have got the evening started in the wrong direction. I could tell you so many stories You are not alone. Love, Mary

I am so happy for you! That will be such a good memory.. As time goes on taking a chance can help us get better and keep our sanity. Paying for an outing is usually worth it. Love, Mary

That is so exciting!!

Welcome and my prayers go out to you and your beautiful family!