mindyleehub

You are so right Deb. Learning to celebrate the small thing is the way for us to get through. I was telling my grandmother the other day that the most frustrating part of this is seeing the things you want to do and knowing you can't. Like on those days when the house is a train wreck and you physically can't do anything about it. That's when I struggle emotionally. We do need to consider ourselves more fortunate than others....it could have been worse. This group is not only a place you come to on the bad days but on the good days to help someone else too. The best part is we are not alone. best of luck mindy

I also am a patient of Dr. Stillman at the Cleveland Clinic. He is incredible!! He will refer you to DR. Fouad for testing but Dr. Stillman really knows his business. He also has a good bedside manor. Let me know if I can help mindy

Thanks so much for the advice. I have horrible leg aches at night and nothing has helped. I'll try anything at this point. Let's hope for sweet dreams. thanks mindy

Hi Everyone, If you can't tell by my name, I am Mindylee1's husband. You guys have brought a whole new avenue into Mindy's life. You know we haven't been dealing with this for as long as alot of you, but it feels like it has been years. We started our lives together with this. I have never met a woman stronger than my wife. But I got to tell you, she needs you all. We have our venting stages, we sit in the middle of the living room floor and ball our eyes out in eachothers arms. This forum let's her talk to people that physically understand her disorder. I know every medication and every doctor she has taken or seen. But sometimes I feel I'm not enough for her. It breaks my heart. When I first read some responses that you guys left Mindy the first time she got on here, I broke down in tears, because finally she doesn't have to sit here and think the only one in her life that cares or understands is me. I LOVE my wife, I will be by her side for the rest of my life. I have really been rambling, I know, but I guess what I am trying to say is... THANK YOU, from the bottom of my heart. Best Wishes To You All... Mitch-