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cma

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Everything posted by cma

  1. I do not agree that everyone with POTS should stay away from yoga. I do some yoga myself ( I'm not diagnosed yet, but I have most of the POTS symptoms ), but yoga classes designed for general public might be too harsh for people with health problems. I think you should have told your yoga instructor about your health status and he/she might have suggested what poses are not suitable for you. I avoid poises with my arms raised over shoulder height and mostly do sitting poses or poses where head is lower then my heart. But again this is only my personal experience and opinion:)
  2. Yes, I did have in mind the TTT. At home the difference between sitting and standing heart rate is 30bpm and sometimes more. Now, Cat_Lady and thankful when you write that your heart rates go to 130bpm is this with beta blockers or without?
  3. So today I was sitting and thinking once again about my last visit to the doctor. I am hoping that he will agree to do the test, but I am concerned that it might be false/negative, because I've noticed that my resting heart rate at the doctor's office is usually higher than my resting heart rate at home, the difference is around 15bpm. I am not sure if the heart rate when I stand there also increases. So I wanted to get your opinions is it possible or should the heart rate when standing also increase. I don't know if my question makes sense, tried to formulate it the best I could and this is all I could get
  4. I wanted to thank everybody for such a warm welcome. I know that you all are amazing people with knowledge and experience and I hope that in this journey I will learn and will be able to share some of my wisdom as well I've already used one of the advices, wrote a letter to my doctor today, lets see if that will help somewhat. I'm amazed with the faith that some of you have, that inspires me not to give up and keep searching and hoping that everything is ok and will be ok no matter how it will turn out to be in the future. Hugs to all of you and again thank you for sharing your experiences. Peace, cma
  5. HI everyone, I am new to this site. I hope to find knowledge, support and just share my experience. I've been sick for more then a year now. It all started with severe dizziness after the surgery for my impacted wisdom teeth. At that time the anesthesia was to blame. After that I had episodes of panic attack, well at least I was told by a doctor it was that. Then unexplained pain in my calves which I still get now and then until this day. My GP told me I was just anxious, but after not getting any better for a few months and a blood test done I was diagnosed with thyroid problems, hyperthyoirdism at that time. High heart rate, fatigue and adrenaline rush all were symptoms of hyperthyroidism. I am autoimmune and at this day my thyroid levels are within normal range, but I don't feel any better. I had days when I was so tired that I could only drag myself to the bathroom and back to bed. Now my thyroid is no more the reason for my symptoms, but they are still present high heart rate which is even higher when I stand up, fatigue, lightheadedness, brain fog, anxiety, calve pain, cold hands and feet, symptoms are worse when it's warm. My first guess was anxiety maybe even agorahobia. I don't feel safe to go anywhere alone, because for some reason I get tired and lightheaded very fast. Bright light in the stores and noise make it worse. I was refered to a new doctor, endocrinologist and he explained to me that he doesn't know what is wrong with me. My heart rate is elevated plus there is some kind of abnormality in my ecg which he didn't explain. He ordered more blood tests and after me mentioning POTS he smiled and told me that I did a good research, but he doesn't think that I have it, because my bp is not low, my heart rate is elevated even when I sit and beta blockers wouldn't help me. I don't know why, but I didn't have anything else what to say. He told me he wants to wait with ttt and wants to do EP instead and try to figure out what is wrong with my heart. I never had heart problems before, I was healthy and fit, a personal trainer before all this happened. When I got home I was so upset that I didn't stood up for myself better and now I have to wait 2 months until the next appointment, because that's how it is in Ireland. I feel devastated . My life has stoped, I've lost myself somewhere along the way, everything that I believed proved to be wrong. I thought if I eat good, take care of myself and exercise I will be healthy for many many years. But life proved me WRONG. I don't exercise I am afraid to make everything worse until I know for sure what is wrong with me. I am so scared at this point about my life. What if it won't go away or get better. I want to have a normal life, have kids and be able to take care of them, I wan't to travel, I want to spend a day without worrying about my health and feeling that my life is over. I understand that probably the majority of you feel this way, but this is still so fresh for me, so raw and painful. I guess I just wanted to share my feelings, because sometimes I feel like an alien. There is a life out there where ppl have kids, and careers and parties with music and drinks, and there is me without all this and only with loneliness left still waiting and hoping. Sorry that I started on this sad note. I am not always like this, but probably today is the day to feel this way. I would like to get any ideas or suggestions. Thanks for beeing here and supporting each other in such a beautiful way.
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