mlkral

Went to Cleveland Clinic. They refured us to an endoctronologist, psychiatrist, nerologist. They will be testing him for adrenal stuff, thyroid, cortisol, and some other stuff. He is now in a wheel chair because he can't stand up without passing out. He even passes out while sitting sometimes. The chair that is on order I think somehow tips back for when he passes out. I am not sure if I understood them right though.

Does anyone know if working around toxic chemical will cause this. Also will this appear out of no where on a very healthy person after becoming extremely dehydrated.

All of his problems started after he worked for a toxic spill chemical clean up place.

The company refuses to tell us what the chemicals were he was working with. We are in the process of getting a laywer to help sort this out and start a law suit if need be. I am convinced that something he came into contact with on the job created this illness in him. At his job he had to wear a white vitex suit. He became very very dehydrated in this suit. The temperatures where he worked are above 110 degrees on an average day.

The only chemical we know he came into contact with for sure is lyme dust.

My husband sees doctor Fouad also. She is wonderful though we still can't figure out what is going on totally with my husband. We were there yesterday. She hooked him up with a portable heart monitor. She wants to see how his heart rate reacts in a normal life situation. Good luck to you!

Dizzy,

I am glad you had a good apointment with Dr. Fouad. I really got alot out of my apointment last year when I was there. The blood vo lume test in Cleveland help alot for me with my doctor treating my illness. I hope when you get the results they can find a treatment that will help you!

Talk to you later!

What does the blood volume test test for? Dr Fouad has not done this test on my husband yet. He may not be stable enough though.

The Cleveland Clinic refered my husband to and endoctrinologist, and a psychiatrist for more test to figure out his symptoms not related to pots. They think maybe he has cushings disease. He now also wears a portable heart monitor so I know when he should go to the ER and when it is ok to stay home.

My husband was diagnosed with POTS last Oct. Since then his health has been getting worse and worse. The doctors at the Cleveland Clinic say that some of his symptoms do not fit POTS. They can not figure out what is wrong with him. Has anyone else experienced these symptoms and can offer some advice in figuring out what is wrong. Stoke and Heart attack has already been ruled out.

Symptoms are:

Tounge goes to right

Can't speak

Can't swallow

Horrible headache on left side of head

Left side weakness

Feels cold all over

Feels like eye is going to pop out from pressure

Eye pain

Gold rings around pupils

Can't walk

Dizzy

Eyes do not work like they are supposed to

Chest pain

Feels like heart is beating so hard it shakes his head

Pain down left arm

Sometimes ear pain

Episodes of syncope

Dehydration even though he is constantly drinking

Extreme fatigue

Insombia

Shortness of breath and difficulty breathing

Racing heart beat

Can't use left arm/leg at times

Sweating a lot

I know some of these symptoms are from POTS, but some are not. Can someone help me get help in finding a diagnosis and more importantly a treatment that works. So far nothing has helped the POTS or these other symptoms. I was told by the Docs. that there is an underlying cause of POTS. We have not figured out this underlying cause as of yet. Thanks!