Ernie

Hi,

Even if I lost my job 8 years ago it still miss it. Especially when I meet someone that does the job that I used to do.

I am sorry for your loss.

Hi,

Emphysema, asthma.

Hi,

Thanks Stacey for your help.

Hi,

I checked my contract another time and it does not mention anything about giving me the information. It does talk about confidentiality but it is with government and insurance companies. They answered most of the questions you wrote Poohbear.

I called the secretary this afternoon and she told me that usually he does not give the documents but since I am asking him he might do so. I have to wait until next week to find out because he is unavailble.

Hi,

I don't know too much how to say this but older people and children have to be careful with medication since their body react differently than an adult.

Hi,

This is part of POTS symptoms.

Hi,

Thank you very much for all your advice. I will call the investigator next week to see if I can work out something.

I read my contract and it does not say that I am not allowed my research records. Before I entered the study I asked if I would get my result and they said yes. That's the reason I accepted to stop my meds again and get really sick.

Hi everyone,

Do any of you know if there is a law in the States that says that the researchers have to give the research patient their tests result?

I went to a research facility and I can't get the test result as they are saying that it is "Research". I would like to have the result in case there is new information about my case.

Thanks

Hi everyone,

For those who have seen Dr Grubb during the last year: Is there a new drug that he is prescribing?

Thanks

Hi,

Welcome aboard.

I think it is worth your while to see a specialist like Dr Morillo.

The basic test is TTT.

Hi,

Mine is caused by high adrenaline.

Hi Suzy,

I am so happy that you finally have the answer has to why to can't tolerate meds. What a victory!

Hi,

It started at my conception.

Hi,

It took 30 years to get diagnosed. They thought it was all in my head. Dr Grubb was the first to diagnose me. He is from another country.

Hi,

I have high adrenaline when supine and extremelly high when standing. I effectively have to be put upside down to stop the adrenaline attacks. This is why I got my hospital bed.

Your medical report makes sense.

Hi,

I think that the increase is only for the time you take Florinef. When you stop it it will decrease.

Hi,

I have intense tremors which is mostly caused by adrenaline. It is controlled by BB.

Hi,

I am sorry Maxine for your loss. I know how hard he struggled to fight the disease.

I take essential oils of eucalyptus and melaleuca.

Hi,

When I wake up and before I get out of bed then every 4 hours after.

Hi,

I was in the hosptal for 3 months and they never found out what I had. Then I went to see my internal medicine doctor who diagnosed endometriosis. I was put on depo provera and the pain disappeared in weeks.

How did they eliminate endometriosis?

Hi,

He needs to want to change and he has to go to anger management class or have a therapy to work on his violent childhood.

Hi,

He might be contributing to making you sicker than you would be without him.

Hi,

Does Hyperkinetic Circulation= High Blood Pressure or is it more of an overall, everything is working faster than it should while supine?

Your blood is circulating too fast when you are supine.

Anyone know if the blood distribution ratio number dropping by 44.5% indicates blood pooling???? Does that mean that 45% of my blood pools???

Your blood left the main blood vessels when you were upright.

Hi,

My baseline HR when I did my TTTs was between 110 and 120 and I was still diagnosed with POTS and NCS.

Maybe ask your doctor for a BB.

Hi,

What is your baseline HR?