Ernie
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Posts posted by Ernie
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Hi,
Knowing I have POTS and NCS I would not push myself like I did for so many years. I would trust myself that there is something wrong instead of believing the doctors who were saying that it was all in my head. I would never take the med that turned me into a disabled person.
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Hi,
I recline when I get on the computer.
What about wearing sunglasses!
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Hi,
OK, Now you have to promise that you will stay home for the Holidays!!!!
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Hi Flop,
I am surely relieved that you are finally home safe.
Enjoy yourelf as much as you can.
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Hi,
That's so nice that you found a comprehensive doctor and a good staff.
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Hi Maxine,
Metamucil is a natural laxative.
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Hi,
I know the feeling. It's a good idea to bring your file. Maybe you could ask the doctor what those abnormal tests could mean and don't let him say or convince you that it's normal.
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Hi,
I think you should show these results to a competent endocrinologist.
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Hi,
If you have tachycardia then I would go ahead and try it. If you go to Mayo then that will be one med that you will have tried.
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Hi,
Now that I look back at it, everytime I took a permanent downfall it was after I had a vasodilator. It is also that class of medication that made me a disabled, bedridden person.
Even if it's genetic I was able to have a normal life previously.
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Hi,
I fell on the ice also yesterday. Both my knees and neck are sore.
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Hi,
I would go because I would like to have access to more tests to have a better idea of what is going wrong with my body.
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Hi,
I agree that dysautonomia is better because it reflect more what we have.
POTS just talks about HR and it is much more than that.
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Hi,
I am the type that prefers to know and be prepared. So if you are the same it would be better to have him tested.
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Hi Rachel,
Congradulation for winning your lawsuit. Are you going to celebrate the event!
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Hi,
I have been married with the same man for years so I don't know much about courting. I learned that you have to give yourself chance to love and be loved.
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Hi,
If you feel safe enough then you could go to the private gym and monitor yourself with your equipment.
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Hi,
Congradulation for your good appointment and managing it well.
Good luck on your exams.
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Hi,
I think that she should be supervised by a responsible adult. She could try one or a few and see how she does. If she is OK than she can do more. She also has to be in contact with herself and stop when she has symptoms.
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Dear Melissa,
I am glad to see that your fever is under control. I am still sending positive thoughts.
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Hi,
My BP is low at night and when I feel bad I take Midrodine (even lying down).
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Hi,
Zofran for nausea.
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Hi,
I sweat from head to toe so much that I have to change clothes during the day. I even sweet in the winter when it's 0 F. So I have to be very careful not to catch a cold. All my family members who have the disorder sweat as much as if we just came out of the shower.
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Hi Tammy,
I have not been permitted to take a bath in 8 years because I could faint and drown in the bath. Dr Grubb even told me never to swim alone because of the paralysis. The first time I paralysed I was 17 years old and competing.
So I use a shower chair and this is a life saver for me. Also you can use colder water if you can tolerate it. You have to avoid vasodilation with the hot water.
Can You Recommend A Stimulant-type Drug?
in Dysautonomia Discussion
Posted
Hi,
Ritalin